Faucounau V, Riguet M, Orvoen G, Lacombe A, Rialle V, Extra J, Rigaud A-S
Service de gérontologie 2, hôpital Broca, 54-56, rue Pascal, 75013 Paris, France.
Ann Phys Rehabil Med. 2009 Sep-Oct;52(7-8):579-87. doi: 10.1016/j.rehab.2009.07.034. Epub 2009 Aug 31.
Wandering is a behavioural disorder, which occurs in Alzheimer's disease or other dementia. People who wander are at risk of physical harm and untimely death. Moreover, wandering behaviour causes a lot of stress to the caregivers. In the last few years, different geolocation devices have been developed in order to minimise risk and manage unsafe wandering. These detection systems rarely meet patients and caregivers' needs because they are not involved in the devices building process.
The aim is to explore the needs and perceptions of wandering persons and their caregivers towards existing tracking devices as well as their acceptability and usability. This paper reports a dyad case.
The tracking system tested is presented as a mobile Global Positioning System (GPS) receiver-shaped, including function of telephony and data transfer via GSM/GPRS.
Dyad patient/caregiver expressed their needs and perceptions towards tracking devices and gave their impressions about the functioning of the tested device at the end of the test.
The patient focused on the device's shape which he found too voluminous and unaesthetic, and was unable to give an opinion about the device's functioning. The spouse highlighted malfunctions and usage difficulties, which made the device not appropriate to her needs.
Involving end-users in the co-design of new technologies is necessary for building tailored devices. Moreover, in this area of dementia care, the person-centred approach is essential to a tailored wandering management.
徘徊是一种行为障碍,发生于阿尔茨海默病或其他痴呆症患者中。徘徊的人面临身体伤害和过早死亡的风险。此外,徘徊行为给照顾者带来很大压力。在过去几年中,为了将风险降至最低并管理不安全的徘徊行为,人们开发了不同的地理定位设备。这些检测系统很少能满足患者和照顾者的需求,因为他们没有参与设备的构建过程。
目的是探索徘徊者及其照顾者对现有跟踪设备的需求和看法,以及这些设备的可接受性和可用性。本文报告了一个二元案例。
所测试的跟踪系统呈现为移动全球定位系统(GPS)接收器形状,包括通过GSM/GPRS进行电话和数据传输的功能。
患者/照顾者二元组表达了他们对跟踪设备的需求和看法,并在测试结束时对测试设备的功能给出了他们的印象。
患者关注设备的形状,他认为该形状过于庞大且不美观,并且无法对设备的功能发表意见。配偶强调了故障和使用困难,这使得该设备不符合她的需求。
让最终用户参与新技术的协同设计对于构建量身定制的设备是必要的。此外,在痴呆症护理领域,以人为本的方法对于量身定制的徘徊管理至关重要。