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基于互联网的护老者支持服务对照顾阿尔茨海默病及相关痴呆症的华裔加人家属的影响

Internet-based caregiver support for Chinese Canadians taking care of a family member with alzheimer disease and related dementia.

机构信息

COTA Health, China.

出版信息

Can J Aging. 2009 Dec;28(4):323-36. doi: 10.1017/S0714980809990158.

Abstract

ABSTRACTThe aim of this study was to assess the usability of a new Internet-based Caregiver Support Service (ICSS) and evaluate its effects on health outcomes of Chinese Canadians who cared for a family member with dementia. Demographic and questionnaire data were collected from 28 participants, and in-depth interviews were conducted with 10 participants. Results showed that non-users reported higher levels of burden post-intervetion, and frequent users showed post-intervention reduction in experienced burden. Traditional beliefs shaped caregivers' needs; also, ethno-cultural-linguistic contexts affected system usability and were associated with usage behaviour. This study indicates that caregivers can benefit from receiving professional support via asynchronous e-mails and a dedicated information web site. The ICSS is a feasible approach for supporting caregivers who prefer an alternative service model. This emerging service requires more research in: enhanced technology design, service delivery models for immigrant caregivers, and evaluation of effectiveness and cost-effectiveness.

摘要

摘要本研究旨在评估一种新的基于互联网的照顾者支持服务(ICSS)的可用性,并评估其对照顾痴呆症家庭成员的加拿大华人的健康结果的影响。从 28 名参与者中收集了人口统计学和问卷调查数据,并对 10 名参与者进行了深入访谈。结果表明,非使用者在干预后报告了更高水平的负担,而频繁使用者在干预后减轻了负担。传统观念塑造了照顾者的需求;此外,种族文化语言背景影响系统的可用性,并与使用行为相关。本研究表明,通过异步电子邮件和专用信息网站,照顾者可以从接受专业支持中受益。ICSS 是一种支持喜欢替代服务模式的照顾者的可行方法。这种新兴服务需要更多的研究:增强技术设计、针对移民照顾者的服务交付模式,以及评估有效性和成本效益。

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