Bybee Sara G, Eaton Jacqueline, Wong Bob
University of Utah College of Nursing, 10 S 2000 E, Salt Lake City, UT 84112, United States of America.
PEC Innov. 2024 May 7;4:100286. doi: 10.1016/j.pecinn.2024.100286. eCollection 2024 Dec.
Investigators should return study results to patients and families facing cancer to honor their research contributions. We created a found poem from transcripts of sexual and gender minority (SGM) couples facing cancer and returned it to study participants.
Participants were randomized to receive the found poem in text, text and audio, audio, or video format, completed dissemination preferences and emotion questionnaires, and open-ended questions about their experience receiving the poem.
Participants preferred the format they received ( = 15, 75.0%), with text-only and combined text and audio formats evoking the greatest number of emotions ( = 13 each). The following categories and subcategories were identified: dyadic experiences (support, strength, depth, durability); dissemination preferences (timing, method); emotion (positive, negative); utility of the found poem (affirming; fostering reflection; not useful or inaccurate, and sense of community). SGM participants utilized positive emotion, affirming, and a sense of community with greater frequency than non-SGM participants.
Innovative approaches to dissemination are acceptable; providing choices in how and when participants receive results may increase engagement; and SGM versus non-SGM groups may describe dyadic experiences differently.
Returning study results via found poetry is an innovative way to honor research participants facing cancer.
研究人员应将研究结果反馈给面临癌症的患者及其家属，以认可他们对研究的贡献。我们根据面临癌症的性少数群体（SGM）夫妇的访谈记录创作了一首拼贴诗，并将其反馈给研究参与者。
参与者被随机分配接受文本、文本与音频、音频或视频格式的拼贴诗，完成关于传播偏好和情感的问卷，以及关于他们接收这首诗的体验的开放式问题。
参与者更喜欢他们所接收的格式（n = 15，75.0%），仅文本格式以及文本与音频组合格式唤起的情感数量最多（各为n = 13）。确定了以下类别和子类别：二元体验（支持、力量、深度、持久性）；传播偏好（时间、方式）；情感（积极、消极）；拼贴诗的效用（肯定；促进反思；无用或不准确，以及社区感）。SGM参与者比非SGM参与者更频繁地运用积极情感、肯定和社区感。
创新的传播方式是可以接受的；在参与者接收结果的方式和时间上提供选择可能会提高参与度；并且SGM组与非SGM组对二元体验的描述可能不同。
通过拼贴诗反馈研究结果是认可面临癌症的研究参与者的一种创新方式。
