Coronado A C, Tran K, Chadder J, Niu J, Fung S, Louzado C, Rahal R
Canadian Partnership Against Cancer, Toronto, ON.
Curr Oncol. 2017 Oct;24(5):332-337. doi: 10.3747/co.24.3782. Epub 2017 Oct 25.
Communication with health care providers during diagnosis and treatment planning is of special importance because it can influence a patient's emotional state, attitude, and decisions about their care. Qualitative evidence suggests that some patients experience poor communication with health care providers and have negative experiences when receiving their cancer diagnosis. Here, we use survey data from 8 provinces to present findings about the experiences of Canadian patients, specifically with respect to patient-provider communication, during the diagnosis and treatment planning phases of their cancer care.
Data from the Ambulatory Oncology Patient Satisfaction Survey, representing 17,809 survey respondents, were obtained for the study.
Most respondents (92%) felt that their care provider told them of their cancer diagnosis in a sensitive manner. Most respondents (95%) also felt that they were provided with enough information about their planned cancer treatment. In contrast, more than half the respondents who had emotional concerns upon diagnosis (56%) were not referred to services that could help with their anxieties and fears. Also, 18% of respondents reported that they were not given the opportunity to discuss treatment options with a care provider, and 17% reported that their care providers did not consider their travel concerns while planning for treatment.
Measuring the patient experience allows for an understanding of how well the cancer control system is addressing the physical, emotional, and practical needs of patients during diagnosis and treatment planning. Although results suggest high levels of patient satisfaction with some aspects of care, quality improvement efforts are still needed to provide person-centred care.
在诊断和治疗规划过程中与医疗服务提供者进行沟通尤为重要，因为这会影响患者的情绪状态、态度以及对自身治疗的决策。定性证据表明，一些患者在与医疗服务提供者沟通时体验不佳，在接受癌症诊断时会有负面经历。在此，我们利用来自8个省份的调查数据，呈现加拿大患者在癌症治疗的诊断和治疗规划阶段的经历，特别是关于患者与医疗服务提供者沟通方面的经历。
本研究获取了门诊肿瘤患者满意度调查的数据，该调查有17,809名受访者。
大多数受访者（92%）认为他们的医疗服务提供者以体贴的方式告知了他们癌症诊断结果。大多数受访者（95%）还认为他们获得了关于计划中的癌症治疗的足够信息。相比之下，超过一半在诊断时存在情绪问题的受访者（56%）未被转介至能够帮助缓解其焦虑和恐惧的服务机构。此外，18%的受访者报告称他们没有机会与医疗服务提供者讨论治疗方案，17%的受访者报告称他们的医疗服务提供者在制定治疗计划时没有考虑他们的出行顾虑。
衡量患者体验有助于了解癌症控制系统在诊断和治疗规划过程中满足患者身体、情感和实际需求的程度。尽管结果表明患者对某些护理方面的满意度较高，但仍需要开展质量改进工作以提供以患者为中心的护理。
