Kent and Canterbury Hospitals NHS Trust, Canterbury, Kent, England.
Epilepsia. 1997 Nov;38(11 Suppl):S6-8. doi: 10.1111/j.1528-1157.1997.tb06130.x.
Inconsistent and inaccurate death certification, lack of agreed definitions, different terminology, and different understanding of the same terminology hamper research into mortality in epilepsy and result in national statistics that are difficult to interpret. A consensus in death certification and in classification of epilepsy-related deaths, including sudden unexpected death in epilepsy (SUDEP), is needed. Guidelines for classifying cases as SUDEP are proposed. Their aim is to allow uniformity and comparability between studies. These guidelines take into account the limits of the information usually available in this setting even when these deaths are investigated. The guidelines are complemented by those dealing with identified deaths in epidemiologic studies where data are lacking.
死亡证明不一致且不准确、缺乏共识定义、术语不同以及对同一术语的不同理解，这些因素都阻碍了癫痫死亡率的研究，导致国家统计数据难以解读。需要在死亡证明和癫痫相关死亡分类方面达成共识，包括癫痫猝死（SUDEP）。提出了分类 SUDEP 病例的指南。其目的是在研究之间实现一致性和可比性。这些指南考虑到了在这种情况下通常可用的信息的局限性，即使在调查这些死亡事件时也是如此。这些指南还补充了在缺乏数据的流行病学研究中处理已确定的死亡事件的指南。
