Hill J, Bird H A, Hopkins R, Lawton C, Wright V
University Department of Medicine, Royal Bath Hospital, Harrogate.
Br J Rheumatol. 1991 Feb;30(1):45-9. doi: 10.1093/rheumatology/30.1.45.
A multi-choice Patient Knowledge Questionnaire (PKQ) was developed for use with patients with rheumatoid arthritis (RA). Test/re-test was used to test its stability (r = 0.81), and Kuder Richardson formula 20 (r = 0.72) for internal consistency. Seventy randomly selected RA patients then completed the PKQ in a rheumatology out-patient clinic of a large teaching hospital. There was a wide variation in total scores ranging from 3 to 28 out of 30. Total scores correlated with years of general education (P less than 0.05) but not with disease duration or age. Sixty-two per cent of patients knew that the cause of RA is, as yet, unknown but 27% thought it could be caused by injury and 11% by cold damp weather. Fifty-two per cent had no idea why they had blood tests. All but four patients were taking some form of medication but there was widespread confusion about disease-modifying drugs and non-steroidal anti-inflammatory drugs (NSAIDs). Exercise was reasonably well understood but many patients were unable to differentiate between methods of energy conservation and joint protection. This study highlights the need for careful individual knowledge assessment by use of tools such as the PKQ and effective patient education programmes.
我们为类风湿性关节炎（RA）患者开发了一份多项选择题形式的患者知识问卷（PKQ）。采用重测法检验其稳定性（r = 0.81），并使用库德-理查森公式20检验其内部一致性（r = 0.72）。随后，从一家大型教学医院的风湿病门诊随机选取70名RA患者完成PKQ。总分差异很大，30分中得分在3至28分之间。总分与普通教育年限相关（P小于0.05），但与病程或年龄无关。62%的患者知道RA的病因目前尚不清楚，但27%的患者认为可能是由损伤引起的，11%的患者认为是由寒冷潮湿天气引起的。52%的患者不知道为什么要进行血液检查。除了4名患者外，所有患者都在服用某种形式的药物，但对于改善病情的药物和非甾体抗炎药（NSAIDs）普遍存在困惑。患者对运动的理解还算不错，但许多患者无法区分节能方法和关节保护方法。这项研究强调了使用PKQ等工具进行仔细的个体知识评估以及有效的患者教育计划的必要性。
