Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, ON, Canada.
Eur J Cancer Care (Engl). 2010 Jan 1;19(1):30-8. doi: 10.1111/j.1365-2354.2008.00969.x. Epub 2009 Nov 11.
Most people have a heightened awareness of death at the moment they receive a cancer diagnosis. Medical treatment attempts to demystify and manage death, yet surprisingly, care that alleviates existential distress is the least provided psychosocial care. A review of empirical research [quantitative and qualitative studies (n = 85) and seven literature reviews] was conducted to explore the experiences of clinicians (primarily nurses) working with cancer patients who experience existential distress. This paper summarizes clinicians' experiences with cancer patients who face the threat of mortality. Given that the majority of literature was found to be in nursing, emphasis in this paper tends to be on nurses' experiences. However, findings are suggested to have implications for other clinicians who deal with similar concerns. A lens of relational ethics was inductively found to organize and highlight problems and gaps that originate from interpersonal concerns. This paper describes four themes requiring further research and education related to existential distress: engagement, embodiment, environment and mutual respect. Implications for oncology care are suggested at the micro-, meso- and macro-levels to encourage clinicians to ethically respond to patients' existential distress needs.
大多数人在被诊断出癌症的那一刻,对死亡的意识会增强。医疗试图揭开死亡的神秘面纱并加以管理,但令人惊讶的是,减轻存在性痛苦的护理是提供得最少的心理社会护理。本文对实证研究[定量和定性研究(n=85)和七篇文献综述]进行了回顾,以探讨与经历存在性痛苦的癌症患者一起工作的临床医生(主要是护士)的体验。本文总结了临床医生与面临死亡威胁的癌症患者的经历。鉴于大多数文献都来自护理领域,本文重点介绍了护士的经验。然而,研究结果表明,这对处理类似问题的其他临床医生也具有一定的意义。关系伦理的视角被发现可以组织和突出源于人际问题的问题和差距。本文描述了需要进一步研究和教育的四个与存在性痛苦相关的主题:参与、体现、环境和相互尊重。本文建议在微观、中观和宏观层面上对肿瘤学护理产生影响,以鼓励临床医生从伦理角度回应患者的存在性痛苦需求。