School of Psychology, Thames Valley University, Paragon House, Brentford, Middlesex TW8 9GA, UK.
Parkinsonism Relat Disord. 2010 Mar;16(3):181-5. doi: 10.1016/j.parkreldis.2009.11.001. Epub 2009 Nov 25.
To refine and validate the Parental Illness Impact Scale (PIIS), a questionnaire designed specifically to measure the quality of life of adolescent and adult children of neurologically affected parents.
Key informant interviews and a literature review were conducted to ensure all relevant themes were incorporated in the revised PIIS (PIIS-R). Pre-testing was achieved through a 17 member expert panel and cognitive interviews with eight adolescent and adult children. The revised instrument was administered to 169 adolescent and adult children of people with Parkinson's disease, multiple sclerosis and stroke and subjected to psychometric analysis.
Principal components analysis resulted in eight subscales accounting for 60.6% of explained variance. The PIIS-R showed good concurrent and discriminant validity through correlations with established measures of quality of life and psychosocial well-being. Internal consistency was high (Cronbach's alpha .92), and test-retest reliability values for subscales (r = .59-.74) and total score (r = .79) were moderate to high.
The PIIS-R is a scientifically robust measurement tool for assessing the impact of parental illness, and currently shows strong psychometric properties. Longitudinal data will be required to assess predictive validity and sensitivity to change. The instrument is available to other investigators, who are encouraged to further evaluate its scientific properties.
完善并验证父母疾病影响量表（PIIS），这是一种专门用于测量受神经影响的父母的青少年和成年子女生活质量的问卷。
通过关键知情人访谈和文献回顾，确保所有相关主题都纳入修订后的 PIIS（PIIS-R）中。通过 17 名专家小组的预测试和 8 名青少年和成年子女的认知访谈进行预测试。对 169 名帕金森病、多发性硬化症和中风患者的青少年和成年子女进行了修订后的量表评估，并进行了心理测量学分析。
主成分分析得出 8 个亚量表，占解释方差的 60.6%。PIIS-R 通过与生活质量和心理社会健康的既定测量方法的相关性，表现出良好的同时效度和判别效度。内部一致性较高（Cronbach's alpha.92），亚量表（r =.59-.74）和总分（r =.79）的重测信度值为中等至高。
PIIS-R 是一种用于评估父母疾病影响的科学可靠的测量工具，目前具有较强的心理测量学特性。需要进行纵向数据分析以评估预测有效性和对变化的敏感性。该工具可供其他研究人员使用，鼓励他们进一步评估其科学特性。
