Primary Palliative Care Research Group, University of Edinburgh, UK.
Palliat Med. 2010 Jul;24(5):493-500. doi: 10.1177/0269216309356030. Epub 2009 Dec 16.
Recent changes to out-of-hours primary care in the UK have generated concerns about care for palliative care patients. The aim of this study was to identify key challenges and improvements to out-of-hours palliative care in a mixed urban and rural deprived area. We integrated data from three sources: interviews with patients and professionals, direct observations of services, and routine statistics. Key issues in the provision of care were the importance of good communication and having information available, the unwieldy process of accessing medical care out of hours, professionals bypassing routine out-of-hours care for palliative care patients, and out-of-hours care being provided by practitioners unaware of local services. We recommend provision to out-of-hours services of an enhanced 'special note' for palliative care patients, to be completed early in the course of the illness and updated regularly. The provision for certain complex patients to bypass NHS24 should be considered if routine care is not satisfactory.
最近,英国非工作时间的初级保健发生了变化,这引发了人们对姑息治疗患者护理的关注。本研究旨在确定混合城市和农村贫困地区非工作时间姑息治疗的主要挑战和改进措施。我们整合了三个来源的数据:患者和专业人员的访谈、对服务的直接观察以及常规统计数据。护理提供方面的主要问题是良好沟通和获取信息的重要性、在非工作时间获得医疗护理的复杂过程、专业人员绕过非工作时间的常规姑息治疗、以及不了解当地服务的从业者提供非工作时间的护理。我们建议向非工作时间服务提供一个增强的“特殊说明”,为姑息治疗患者提供,在疾病的早期完成,并定期更新。如果常规护理不满意,应考虑为某些复杂患者提供绕过 NHS24 的服务。