Schnall Rebecca, Hirshfield Sabina, Liu Jianfang, Siegel Karolynn, Gradilla Melissa
J Assoc Nurses AIDS Care. 2018 Mar-Apr;29(2):152-162. doi: 10.1016/j.jana.2017.08.008. Epub 2017 Sep 7.
People living with HIV (PLWH) are aging and many suffer with multimorbidities, making caregiving a relevant and important area of study. The purpose of our study was to understand the occurrence and role of informal caregivers in the current stage of the HIV epidemic. We conducted a Web-based survey with 1,373 PLWH to assess: how many had an informal, unpaid caregiver; the type of relationship with the informal caregiver; and the number of hours the caregiver provided support each day. Among respondents, 333 had an informal caregiver. Blacks, those with low income, individuals who ever had an AIDS diagnosis, those with basic cellphone service, and those living with other comorbid conditions were significantly more likely to have an informal caregiver. Given the demographic profile of those PLWH who were most likely to have caregivers, further study is needed to understand the needs of both caregivers and care recipients.
感染艾滋病毒的人(PLWH)正在老龄化,许多人患有多种疾病,这使得护理成为一个相关且重要的研究领域。我们研究的目的是了解非正式护理人员在当前艾滋病毒流行阶段的出现情况和作用。我们对1373名感染艾滋病毒的人进行了一项基于网络的调查,以评估:有多少人有非正式的无偿护理人员;与非正式护理人员的关系类型;以及护理人员每天提供支持的小时数。在受访者中,333人有非正式护理人员。黑人、低收入者、曾被诊断患有艾滋病的人、使用基本手机服务的人以及患有其他合并症的人更有可能有非正式护理人员。鉴于最有可能有护理人员的艾滋病毒感染者的人口统计学特征,需要进一步研究以了解护理人员和护理接受者的需求。