The University of Sheffield, Sheffield, United Kingdom.
Qual Health Res. 2010 Mar;20(3):340-51. doi: 10.1177/1049732309358328. Epub 2010 Jan 6.
Use of preference-based measures (PBM) of health-related quality of life (HRQoL) is increasing. PBMs allow the calculation of quality-adjusted life years, which can be used in decision making. Research in the field of pediatric PBMs is lacking. This work is the first stage in the development of a new generic, pediatric PBM of HRQoL. Seventy-four qualitative interviews were undertaken with children to find out how health affects their lives. Sampling was purposive, balancing primarily for health within age, with gender and ethnicity as secondary criteria. Interviews covered a wide range of health conditions, and children were successfully able to articulate how their health affected their lives. Eleven dimensions of HRQoL were identified, covering social, emotional, and physical aspects, in common with other generic pediatric HRQoL measures, but differ by including feeling jeal'ous and feeling tired/weak and not including dimensions related to parental, family, or behavioral issues.
使用健康相关生活质量（HRQoL）的偏好为基础的测量方法（PBM）正在增加。PBM 允许计算质量调整生命年，可用于决策。儿科 PBM 领域的研究不足。这项工作是开发新的通用儿科 HRQoL PBM 的第一阶段。对儿童进行了 74 次定性访谈，以了解健康如何影响他们的生活。抽样是有目的的，主要根据年龄内的健康状况进行平衡，性别和种族是次要标准。访谈涵盖了广泛的健康状况，并且儿童能够成功地阐明健康状况如何影响他们的生活。确定了 11 个 HRQoL 维度，涵盖了社会、情感和身体方面，与其他通用儿科 HRQoL 测量方法相同，但通过包括嫉妒和疲劳/虚弱的感觉以及不包括与父母、家庭或行为问题相关的维度来区分。
