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家庭成员照护者、患者和医生:优化关系的伦理指导。

Family caregivers, patients and physicians: ethical guidance to optimize relationships.

机构信息

Center for Ethics and Professionalism, American College of Physicians, 190 North Independence Mall West, Philadelphia, PA 19106-1572, USA.

出版信息

J Gen Intern Med. 2010 Mar;25(3):255-60. doi: 10.1007/s11606-009-1206-3.

DOI:10.1007/s11606-009-1206-3
PMID:20063128
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2839338/
Abstract

Family caregivers play a major role in maximizing the health and quality of life of more than 30 million individuals with acute and chronic illness. Patients depend on family caregivers for assistance with daily activities, managing complex care, navigating the health care system, and communicating with health care professionals. Physical, emotional and financial stress may increase caregiver vulnerability to injury and illness. Geographically distant family caregivers and health professionals in the role of family caregivers may suffer additional burdens. Physician recognition of the value of the caregiver role may contribute to a positive caregiving experience and decrease rates of patient hospitalization and institutionalization. However, physicians may face ethical challenges in partnering with patients and family caregivers while preserving the primacy of the patient-physician relationship. The American College of Physicians in conjunction with ten other professional societies offers ethical guidance to physicians in developing mutually supportive patient-physician-caregiver relationships.

摘要

家庭照顾者在最大限度地提高 3000 多万名急性和慢性病患者的健康和生活质量方面发挥着重要作用。患者依赖家庭照顾者来帮助他们进行日常活动、管理复杂的护理、在医疗保健系统中进行导航以及与医疗保健专业人员进行沟通。身体、情感和经济压力可能会增加照顾者受伤和患病的脆弱性。地理上遥远的家庭照顾者和担任家庭照顾者角色的医疗保健专业人员可能会承受额外的负担。医生认识到照顾者角色的价值可能有助于提供积极的照顾体验,并降低患者住院和住院治疗的比率。然而,医生在与患者和家庭照顾者合作的同时,可能会面临维护医患关系至上的伦理挑战。美国医师学院与其他十个专业协会一起,为医生提供了制定相互支持的医患照顾者关系的伦理指导。

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本文引用的文献

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Goals of care toward the end of life: a structured literature review.临终关怀目标:一项结构化文献综述。
Am J Hosp Palliat Care. 2008;25(6):501-11. doi: 10.1177/1049909108328256.
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A daughter's duty.女儿的职责。
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Reducing the distance in distance-caregiving by technology innovation.通过技术创新缩短远程照护中的距离。
Clin Interv Aging. 2007;2(2):267-72.
4
Valuing the invaluable: a new look at the economic value of family caregiving.重视无价之物:对家庭护理经济价值的新审视。
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Controlling death: the false promise of advance directives.控制死亡:预先指示的虚假承诺。
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Enhancing the quality of life of dementia caregivers from different ethnic or racial groups: a randomized, controlled trial.提高不同种族或民族痴呆症护理人员的生活质量:一项随机对照试验。
Ann Intern Med. 2006 Nov 21;145(10):727-38. doi: 10.7326/0003-4819-145-10-200611210-00005.
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The care transitions intervention: results of a randomized controlled trial.护理过渡干预:一项随机对照试验的结果
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