Nijmegen Centre for Evidence Based Practice, Nijmegen, The Netherlands.
Parkinsonism Relat Disord. 2009 Dec;15 Suppl 3:S219-23. doi: 10.1016/S1353-8020(09)70819-3.
Parkinson's disease (PD) is a chronic and progressive neurodegenerative disorder with a complex phenotype, featuring a wide variety of both motor and non-motor symptoms. Current medical management is usually monodisciplinary, with an emphasis on drug treatment, sometimes supplemented with deep brain surgery. Despite optimal medical management, most patients become progressively disabled. Allied health care may provide complementary benefits to PD patients, even for symptoms that are resistant to pharmacotherapy or surgery. This notion is increasingly supported by scientific evidence. In addition, the role of allied health care is now documented in recent clinical practice guidelines that are available for physiotherapy, occupational therapy and speech-language therapy. Unfortunately, adequate delivery of allied health care is threatened by the insufficient expertise among most therapists, and the generally low patient volumes for each individual therapist. Moreover, most allied health interventions are used in isolation, with insufficient collaboration and communication with other disciplines involved in the care for PD patients. Clinical experience suggests that optimal management requires a multidisciplinary approach, with multifactorial health plans tailored to the needs of each individual patient. Although the merits of specific allied health care interventions have been scientifically proven for other chronic disorders, only few studies have tried to provide a scientific basis for a multidisciplinary care approach in PD. The few studies published so far were not yet convincing. We conclude by providing recommendations for current multidisciplinary care in PD, while highlighting the need for future clinical trials to evaluate the cost-effectiveness of a multidisciplinary team approach.
帕金森病(PD)是一种慢性进行性神经退行性疾病,具有复杂的表型,表现出广泛的运动和非运动症状。目前的医学管理通常是单一学科的,侧重于药物治疗,有时辅以深部脑手术。尽管进行了最佳的医学管理,但大多数患者仍逐渐丧失能力。辅助医疗可能会为 PD 患者提供补充益处,即使是对药物治疗或手术有抗性的症状也是如此。这一观点越来越得到科学证据的支持。此外,辅助医疗的作用现在在最近的临床实践指南中得到了记录,这些指南适用于物理治疗、职业治疗和言语治疗。不幸的是,由于大多数治疗师缺乏足够的专业知识,以及每位治疗师的患者数量普遍较低,因此辅助医疗的充分提供受到了威胁。此外,大多数辅助健康干预措施都是孤立使用的,与参与 PD 患者护理的其他学科之间缺乏协作和沟通。临床经验表明,最佳管理需要多学科方法,根据每个患者的需求制定多因素健康计划。尽管特定辅助医疗干预措施的优点已在其他慢性疾病中得到科学证明,但只有少数研究试图为 PD 中的多学科护理方法提供科学依据。迄今为止发表的少数研究还不够有说服力。我们在为 PD 提供当前多学科护理的建议的同时,强调需要进行未来的临床试验来评估多学科团队方法的成本效益。