Williams Phoebe Dauz, Ridder E Lavonne, Setter Robyn Karlin, Liebergen Adrienne, Curry Heather, Piamjariyakul Ubolrat, Williams Arthur R
University of Kansas School of Nursing, 3901 Rainbow Blvd., Kansas City, KS 66160, USA.
Issues Compr Pediatr Nurs. 2009;32(2):94-113. doi: 10.1080/01460860902740990.
This study is a secondary analysis of data gathered during baseline data collection prior to a cognitive-psychosocial-respite intervention provided in a randomized controlled trial (RCT). Content analysis was used to identify themes in parents' responses to an open-ended item about their perceptions of the effects on siblings of having a brother or sister who has either cancer or cystic fibrosis (CF). Of 91 themes tallied in the cancer group (n = 29), 74.5% reflected negative manifestations of increased risk in siblings, 1.1% no risk; and 24.2%, positive outcomes. Of 53 themes tallied in the CF group (n = 15), the same three categories had 67.9 %, 0%, and 32.1%, respectively. Contemporary life in these families portrayed in parents' descriptions not only validate the rationale for the RCT done, but also suggest the need in ambulatory pediatrics for intervention research on these vulnerable populations.
本研究是对一项随机对照试验（RCT）中提供认知心理社会缓解干预之前基线数据收集期间所收集数据的二次分析。内容分析用于确定父母对一个开放式问题的回答中的主题，该问题是关于他们对有患癌症或囊性纤维化（CF）的兄弟姐妹对其其他兄弟姐妹影响的看法。在癌症组（n = 29）统计的91个主题中，74.5%反映了兄弟姐妹风险增加的负面表现，1.1%表示无风险；24.2%表示有积极结果。在CF组（n = 15）统计的53个主题中，这三个类别分别占67.9%、0%和32.1%。父母描述中所描绘的这些家庭的现代生活不仅证实了所进行的RCT的基本原理，还表明在门诊儿科中需要对这些弱势群体进行干预研究。
