Tekle-Haimanot R, Abebe M, Forsgren L, Gebre-Mariam A, Heijbel J, Holmgren G, Ekstedt J
Department of Internal Medicine, Addis Ababa University, Ethiopia.
Soc Sci Med. 1991;32(2):203-9. doi: 10.1016/0277-9536(91)90061-g.
In the farming community of the sub-district of Meskan and Mareko in central Ethiopia, where the prevalence of epilepsy is known to be 5.2/1000, a door-to-door survey was undertaken in 1546 sampled households to find out public attitudes to epilepsy. Nearly 64% of the respondents were in the age group of 14-50 years, and 58.6% were women. The majority (86%) were illiterate, and 94% had incomes of a subsistence level; 89% had heard or witnessed seizures. Traditional views on the association of evil spirits and superstition was prevalent. By 45% of the interviewees, the disease was believed to be contagious through physical contacts during an attack. Although there was sympathetic concern in the community for the person suffering from epilepsy, negative attitudes were strong on matrimonial associations, sharing of accommodation and physical contacts with affected persons, particularly when there were obvious signs and frequent attacks by seizures. The study demonstrates that the rural community has very poor knowledge of the causes and nature of epilepsy, and this has resulted in social deprivations and at times, rejection of the sufferers.
在埃塞俄比亚中部梅斯坎和马雷科分区的农业社区,已知癫痫患病率为5.2/1000,对1546户抽样家庭进行了挨家挨户的调查,以了解公众对癫痫的态度。近64%的受访者年龄在14至50岁之间,58.6%为女性。大多数(86%)是文盲,94%的人收入仅够维持生计;89%的人听说过或目睹过癫痫发作。关于邪灵和迷信关联的传统观念盛行。45%的受访者认为这种疾病在发作时会通过身体接触传染。尽管社区中对癫痫患者有同情关怀,但在婚姻关系、合住以及与患者的身体接触方面,负面态度强烈,尤其是当有明显症状且癫痫频繁发作时。该研究表明,农村社区对癫痫的病因和性质了解非常匮乏,这导致了社会剥夺,有时还会出现对患者的排斥。