Norris Jill M, Moules Nancy J, Pelletier Guy, Culos-Reed S Nicole
University of Calgary, Alberta, Canada.
J Pediatr Oncol Nurs. 2010 Jul-Aug;27(4):196-208. doi: 10.1177/1043454209358411. Epub 2010 Feb 19.
The present study examined physical activity levels within young families of pediatric cancer survivors and the relationship between physical activity and health-related quality of life (HRQL). Nineteen families were recruited, including 33 parents, 17 pediatric cancer survivors, and 10 siblings. Families completed a self-report survey on background information, physical activity levels, and PedsQL generic core scale for child HRQL. Results of this cross-sectional study indicate that families were generally active, with mothers more frequently participating in overall physical activity (P < .001). Within families, parent-child physical activity levels were associated, but not survivor-sibling physical activity. Survivors and siblings did not differ in their self-reported physical activity levels or HRQL, and no association was observed between physical activity and HRQL. However, discrepancies between sibling self-report and parent proxy-reported HRQL were notable. Overall, results from this exploratory pilot work will assist in further research into physical activity behaviors and HRQL in families of pediatric cancer survivors.The nurse should consider the varied experiences of family members, particularly those of siblings, through long-term follow-up.
本研究调查了儿科癌症幸存者的年轻家庭中的身体活动水平，以及身体活动与健康相关生活质量（HRQL）之间的关系。招募了19个家庭，包括33名家长、17名儿科癌症幸存者和10名兄弟姐妹。这些家庭完成了一份关于背景信息、身体活动水平以及儿童HRQL的儿童生活质量量表通用核心版的自我报告调查。这项横断面研究的结果表明，这些家庭总体上较为活跃，母亲更频繁地参与总体身体活动（P <.001）。在家庭内部，亲子身体活动水平相关，但幸存者与兄弟姐妹的身体活动不相关。幸存者和兄弟姐妹在自我报告的身体活动水平或HRQL方面没有差异，并且未观察到身体活动与HRQL之间存在关联。然而，兄弟姐妹自我报告的HRQL与家长代理报告的HRQL之间的差异很显著。总体而言，这项探索性试点工作的结果将有助于进一步研究儿科癌症幸存者家庭中的身体活动行为和HRQL。护士应通过长期随访考虑家庭成员的不同经历，尤其是兄弟姐妹的经历。
