Department of Health Sciences and Graduate School for Health Research (SHARE), University Medical Center Groningen, University of Groningen, The Netherlands.
Res Dev Disabil. 2010 May-Jun;31(3):698-704. doi: 10.1016/j.ridd.2010.01.011. Epub 2010 Feb 25.
Valid community-based data on the prevalence of chronic diseases in adolescents (12-18 years) with intellectual disability (ID-adolescents) are scarce. The aim of this study was to assess the prevalence rates and the nature of chronic diseases in a population of ID-adolescents and to compare them with the rates among adolescents in the general population. Therefore, we obtained data on 1083 ID-adolescents attending secondary schools, day care centers or living in residential centers fully covering one region of The Netherlands. Parents of the adolescents completed a questionnaire about the occurrence of chronic diseases in their child during the previous 12 months and about background characteristics. The questionnaire was derived from the Dutch National Permanent Survey on Living Conditions questionnaire periodically administered in a representative population sample (n approximately = 10,000). Prevalence rates of chronic diseases in ID-adolescents were compared with those in adolescents in the Dutch general population. Among ID-adolescents, high prevalence rates of a wide range of chronic diseases were found. The five most prevalent were: ADHD (21.1%), PDD-NOS (14.0%), dyslexia (13.9%), migraine or chronic headache (12.7%), and autistic disorder (10.9%). These prevalence rates were all higher (p<0.05) than among adolescents in the general population. Of all ID-adolescents, 62.9% was reported to have at least one chronic disease. The burden of chronic diseases among ID-adolescents is very high, showing a high need for adequate care. These high prevalence rates should alert policymakers and clinicians regarding the widespread of chronic diseases among ID-adolescents.
关于智障青少年(12-18 岁)慢性疾病的流行情况,目前基于社区的有效数据较为匮乏。本研究旨在评估智障青少年人群中慢性疾病的流行率及其性质,并将其与普通青少年人群中的比率进行比较。为此,我们获取了就读于中学、日托中心或居住在住宅中心的 1083 名智障青少年的数据,这些中心全面覆盖了荷兰的一个地区。青少年的父母完成了一份问卷,内容涉及其子女在过去 12 个月中慢性疾病的发生情况及其背景特征。该问卷源自荷兰国家生活条件定期调查(在代表性人群样本中约每 10000 人进行一次)。我们将智障青少年的慢性疾病流行率与荷兰普通青少年人群中的比率进行了比较。在智障青少年中,发现了一系列慢性疾病的高流行率。最常见的五种疾病是:注意缺陷多动障碍(21.1%)、未特定的广泛性发育障碍(14.0%)、诵读困难(13.9%)、偏头痛或慢性头痛(12.7%)和自闭症障碍(10.9%)。这些流行率均高于普通青少年人群(p<0.05)。报告称,所有智障青少年中有 62.9%至少患有一种慢性疾病。智障青少年的慢性疾病负担非常高,表明他们对适当护理的需求很大。这些高流行率应引起政策制定者和临床医生的重视,关注智障青少年中慢性疾病的广泛存在。