• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

肌萎缩侧索硬化症评估问卷(ALSAQ - 40)葡萄牙语版本的效度验证。

Validation of the Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40) scale in the Portuguese language.

作者信息

Pavan Karina, Marangoni Bruna E M, Zinezzi Marcela O, Schmidt Kizi B, Oliveira Berenice Cataldo, Buainain Renata P, Lianza Sérgio

机构信息

Faculty of Medical Sciences at Santa Casa de São Paulo.

出版信息

Arq Neuropsiquiatr. 2010 Feb;68(1):48-51. doi: 10.1590/s0004-282x2010000100011.

DOI:10.1590/s0004-282x2010000100011
PMID:20339652
Abstract

The amyotrophic lateral sclerosis (ALS) is a degenerative neurological disorder that has a great impact in the quality of life of the patients. This study had the objective of validating the ALS Assessment Questionnaire in the Portuguese Language (ALSAQ-40/BR). The version of ALSAQ-40/BR, was adapted into the Portuguese language after the evaluation and re-evaluation of 20 patients with a defined ALS diagnosis. The demonstration of its reproducibility and reliability makes this instrument an additional and useful parameter which can be used in the evaluation of ALS for research or assistance.

摘要

肌萎缩侧索硬化症(ALS)是一种退行性神经疾病,对患者的生活质量有很大影响。本研究旨在验证葡萄牙语版的肌萎缩侧索硬化症评估问卷(ALSAQ - 40/BR)。在对20例确诊为ALS的患者进行评估和重新评估后,将ALSAQ - 40/BR版本改编成了葡萄牙语。其可重复性和可靠性的证明使该工具成为一个额外且有用的参数,可用于ALS的研究或辅助评估。

相似文献

1
Validation of the Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40) scale in the Portuguese language.肌萎缩侧索硬化症评估问卷(ALSAQ - 40)葡萄牙语版本的效度验证。
Arq Neuropsiquiatr. 2010 Feb;68(1):48-51. doi: 10.1590/s0004-282x2010000100011.
2
Spanish adaptation of the Amyotrophic Lateral Sclerosis Questionnaire ALSAQ-40 for ALS patients.肌萎缩侧索硬化症患者问卷ALSAQ - 40的西班牙语改编版。
Amyotroph Lateral Scler. 2008 Jun;9(3):168-72. doi: 10.1080/17482960801934072.
3
Cross-cultural adaptation and validation of als Functional Rating Scale-Revised in Portuguese language.肌萎缩侧索硬化功能评定量表修订版葡萄牙语版本的跨文化调适与验证
Arq Neuropsiquiatr. 2010 Feb;68(1):44-7. doi: 10.1590/s0004-282x2010000100010.
4
Validity and Reliability of the Turkish Version of the Amyotrophic Lateral Sclerosis Assessment Questionnaire.肌萎缩侧索硬化评估问卷土耳其语版的有效性和可靠性。
J Neurosci Nurs. 2019 Oct;51(5):253-258. doi: 10.1097/JNN.0000000000000466.
5
Cross-cultural adaptation and validation for the Brazilian population of the instrument Amyotrophic Lateral Sclerosis-Specific Quality of Life-Short Form (ALSSQOL-SF).肌萎缩侧索硬化症特异性生活质量量表-短表(ALSSQOL-SF)巴西人群的跨文化调适和验证。
Qual Life Res. 2020 Mar;29(3):805-813. doi: 10.1007/s11136-019-02342-2. Epub 2019 Oct 29.
6
[Validity and clinical applicability of the Japanese version of amyotrophic lateral sclerosis--assessment questionnaire 40 (ALSAQ-40)].[肌萎缩侧索硬化症日本版评估问卷40(ALSAQ - 40)的有效性及临床适用性]
No To Shinkei. 2004 Jun;56(6):483-94.
7
The amyotrophic lateral sclerosis assessment questionnaire (ALSAQ-40): tests of data quality, score reliability and response rate in a survey of patients.肌萎缩侧索硬化症评估问卷(ALSAQ - 40):患者调查中的数据质量、评分可靠性及回复率测试
J Neurol Sci. 2000 Nov 1;180(1-2):94-100. doi: 10.1016/s0022-510x(00)00420-2.
8
Validation of the Persian version of the 40-item amyotrophic lateral sclerosis assessment questionnaire.40项肌萎缩侧索硬化症评估问卷波斯语版本的验证
Iran J Neurol. 2013;12(3):102-5.
9
Trends of quality of life changes in amyotrophic lateral sclerosis patients.肌萎缩侧索硬化症患者生活质量变化趋势
J Neurol Sci. 2016 Sep 15;368:35-40. doi: 10.1016/j.jns.2016.06.056. Epub 2016 Jun 25.
10
Reduced item set for the amyotrophic lateral sclerosis assessment questionnaire: development and validation of the ALSAQ-5.肌萎缩侧索硬化症评估问卷的简化项目集:ALSAQ-5的开发与验证
J Neurol Neurosurg Psychiatry. 2001 Jan;70(1):70-3. doi: 10.1136/jnnp.70.1.70.

引用本文的文献

1
Advancing Future Amyotrophic Lateral Sclerosis Medicines by Incorporating The Patient Voice Into Patient-Centered Holistic Measurement Strategies for Clinical and Real-World Studies: Results from Targeted Literature Reviews.通过将患者声音纳入临床和真实世界研究的以患者为中心的整体测量策略来推进未来的肌萎缩侧索硬化症药物:靶向文献综述的结果
Neurol Ther. 2025 May 12. doi: 10.1007/s40120-025-00740-y.
2
Patient-Reported Outcome Measures in Neuromuscular Diseases: A Scoping Review.神经肌肉疾病患者报告的结局指标:一项范围综述
J Neuromuscul Dis. 2024;11(3):567-577. doi: 10.3233/JND-240003.
3
Assessing the psychometric properties of quality of life measures in individuals with amyotrophic lateral sclerosis: a systematic review.
评估肌萎缩侧索硬化症患者生活质量测量工具的心理测量学特性:系统评价。
Qual Life Res. 2023 Sep;32(9):2447-2462. doi: 10.1007/s11136-023-03377-2. Epub 2023 Mar 7.
4
Measurement Properties of Self-Report Questionnaires for Amyotrophic Lateral Sclerosis: A Systematic Review and Meta-Analysis of Commonly Used Instruments.肌萎缩侧索硬化症自我报告问卷的测量特性:常用工具的系统评价和荟萃分析。
Int J Environ Res Public Health. 2023 Feb 14;20(4):3310. doi: 10.3390/ijerph20043310.
5
Fatigue in amyotrophic lateral sclerosis and correlated factors.肌萎缩侧索硬化症中的疲劳及其相关因素。
Arq Neuropsiquiatr. 2022 Oct;80(10):1045-1051. doi: 10.1055/s-0042-1758563. Epub 2022 Dec 19.
6
Quality of life, disability, and clinical variables in amyotrophic lateral sclerosis.肌萎缩侧索硬化症患者的生活质量、残疾和临床变量。
Arq Neuropsiquiatr. 2022 Mar;80(3):255-261. doi: 10.1590/0004-282X-ANP-2021-0201.
7
Efficacy of different interaction devices using non-immersive virtual tasks in individuals with Amyotrophic Lateral Sclerosis: a cross-sectional randomized trial.肌萎缩侧索硬化症患者使用非沉浸式虚拟任务的不同交互设备的疗效:一项横断面随机试验
BMC Neurol. 2018 Dec 17;18(1):209. doi: 10.1186/s12883-018-1212-3.
8
Stability and relative validity of the Neuromuscular Disease Impact Profile (NMDIP).神经肌肉疾病影响量表(NMDIP)的稳定性和相对效度。
BMC Neurol. 2017 May 11;17(1):87. doi: 10.1186/s12883-017-0866-6.
9
Effects of non-invasive ventilation and posture on chest wall volumes and motion in patients with amyotrophic lateral sclerosis: a case series.无创通气和体位对肌萎缩侧索硬化症患者胸壁容量和运动的影响:一项病例系列研究。
Braz J Phys Ther. 2016 Jul-Aug;20(4):336-44. doi: 10.1590/bjpt-rbf.2014.0164. Epub 2016 Jun 16.
10
Validation of the Persian version of the 40-item amyotrophic lateral sclerosis assessment questionnaire.40项肌萎缩侧索硬化症评估问卷波斯语版本的验证
Iran J Neurol. 2013;12(3):102-5.