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审视我们的问题:常见问题是否充分涵盖了受异常子宫出血影响最大的女性生活方面?参与焦点小组讨论的异常子宫出血女性的观点。

Questioning our questions: do frequently asked questions adequately cover the aspects of women's lives most affected by abnormal uterine bleeding? Opinions of women with abnormal uterine bleeding participating in focus group discussions.

作者信息

Matteson Kristen A, Clark Melissa A

机构信息

Division of Research, Department of Obstetrics and Gynecology, Women and Infants Hospital, Warren Alpert Medical School of Brown University, Providence, RI 02905-2401, USA.

出版信息

Women Health. 2010 Mar;50(2):195-211. doi: 10.1080/03630241003705037.

DOI:10.1080/03630241003705037
PMID:20437305
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2884378/
Abstract

Objectives of this article are: (1) to explore the effects on women's lives by heavy or irregular menstrual bleeding; and (2) to examine whether aspects of women's lives most affected by heavy or irregular menstrual bleeding were adequately addressed by questions that are frequently used in clinical encounters and available questionnaires. We conducted four focus group sessions with a total of 25 English-speaking women who had reported abnormal uterine bleeding. Discussions included open-ended questions that pertained to bleeding, aspects of life affected by bleeding, and questions frequently used in clinical settings about bleeding and quality of life. We identified five themes that reflected how women's lives were affected by heavy or irregular menstrual bleeding: irritation/inconvenience, bleeding-associated pain, self-consciousness about odor, social embarrassment, and ritual-like behavior. Although women responded that the frequently used questions about bleeding and quality of life were important, they felt that the questions failed to go into enough depth to adequately characterize their experiences. Based on the themes identified in our focus group sessions, clinicians and researchers may need to change the questions used to capture "patient experience" with abnormal uterine bleeding more accurately.

摘要

本文的目的是

(1)探讨月经过多或月经不规律对女性生活的影响;(2)检验临床问诊和现有问卷中常用的问题是否充分涉及了女性生活中受月经过多或月经不规律影响最大的方面。我们对25名报告有子宫异常出血的英语女性进行了四次焦点小组会议。讨论包括与出血、受出血影响的生活方面以及临床环境中关于出血和生活质量的常用问题相关的开放式问题。我们确定了五个主题,反映了月经过多或月经不规律如何影响女性生活:恼怒/不便、与出血相关的疼痛、对气味的自我意识、社交尴尬以及仪式般的行为。尽管女性回应称,关于出血和生活质量的常用问题很重要,但她们觉得这些问题没有深入到足以充分描述她们的经历。根据我们焦点小组会议确定的主题,临床医生和研究人员可能需要改变用于更准确地捕捉子宫异常出血“患者体验”的问题。

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本文引用的文献

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The experience of heavy menstrual bleeding: a systematic review and meta-ethnography of qualitative studies.月经量过多的经历:定性研究的系统评价与元民族志研究
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BMC Womens Health. 2007 Jun 2;7:8. doi: 10.1186/1472-6874-7-8.
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A systematic review evaluating health-related quality of life, work impairment, and health-care costs and utilization in abnormal uterine bleeding.一项评估异常子宫出血患者健康相关生活质量、工作能力受损情况以及医疗保健成本与利用情况的系统评价。
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A process designed to lead to international agreement on terminologies and definitions used to describe abnormalities of menstrual bleeding.一个旨在就用于描述月经出血异常的术语和定义达成国际共识的过程。
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