Royal Manchester Children's Hospital, Manchester M13 9WL, UK.
Arch Dis Child. 2010 Aug;95(8):606-11. doi: 10.1136/adc.2009.176255. Epub 2010 Jun 1.
Despite improvements in recent years at many centres, there remains an overall lack of consistency in the healthcare and support services provided to young people during their transition from paediatric to adult transplant units. Concerns that such deficiencies may be causally related to subsequent graft loss through patient non-concordance have prompted calls for the delivery of a more patient-centred service. To address these issues, representatives from major transplantation centres in the UK (cardiac, hepatic, renal) and across all disciplines were brought together to produce a series of consensus statements specifying key actions needed to improve the quality and consistency of transition healthcare.
Participants at the meeting included transplant physicians and surgeons from both adult and paediatric centres, allied health professionals (nurse specialists, psychologists, psychosocial support workers, transplant coordinators, youth workers), as well as young or adolescent transplant patients, their parents/carers and representatives of various support groups concerned with the young transitioning patient. The meeting consisted of presentations, group discussions (plenary and breakout) and a final discussion led by the seven participants who comprised the consensus panel.
Seven consensus statements emerged from the meeting, which are strongly representative of the current opinion of families and the UK transplant community.
The actions they specify may therefore be seen as recommendations for timely and wide adoption, and as guidelines for best practice.
尽管近年来许多中心都有所改善，但在年轻人从儿科到成人移植病房过渡期间，提供的医疗保健和支持服务仍然缺乏一致性。有人担心，这些缺陷可能与随后因患者不配合而导致移植物丢失有关，这促使人们呼吁提供更以患者为中心的服务。为了解决这些问题，来自英国（心脏、肝脏、肾脏）主要移植中心的代表以及所有学科的代表聚集在一起，制定了一系列共识声明，规定了改善过渡医疗保健质量和一致性所需的关键行动。
会议参与者包括来自成人和儿科中心的移植医生和外科医生、以及各专业的辅助医疗专业人员（护士专家、心理学家、心理社会支持工作者、移植协调员、青年工作者），以及年轻或青少年移植患者、他们的父母/照顾者和关心年轻过渡患者的各种支持团体的代表。会议包括演讲、小组讨论（全体会议和分组会议）以及由共识小组成员组成的七名参与者进行的最终讨论。
会议提出了七点共识声明，这些声明强烈代表了当前家庭和英国移植界的意见。
因此，他们规定的行动可以被视为及时和广泛采用的建议，以及最佳实践的指南。
