Minogue Virginia, Girdlestone John
West Yorkshire Mental Health Research and Development Consortium, Leeds, UK.
Int J Health Care Qual Assur. 2010;23(4):422-35. doi: 10.1108/09526861011037470.
The purpose of this paper is to examine the role of service user and carer involvement in NHS research and describe the nature of this involvement in three specialist mental health Trusts. It also aims to discuss the value of service user and carer involvement and present the perspective of the service user and research manager.
DESIGN/METHODOLOGY/APPROACH: The paper reviews patient and public involvement policy and practice in the NHS and NHS research. It examines the effectiveness of involvement activity and utilises a case example to demonstrate the impact of patient/service user involvement on the NHS and the individuals who take part.
The paper concludes that service user involvement is essential if research is to support the development of health services that clearly reflect the needs of the service user and impact positively on service quality.
Service user involvement is an established element of NHS research and development at both national and local level. The Department of Health strategy for research, Best Research for Best Health, reiterates both the importance of research that benefits the patient and the involvement of the service user in the research process. Despite this, the changes in Department of Health support funding for research, introduced by the strategy, may inadvertently lead to some NHS Trusts experiencing difficulty in resourcing this important activity.
ORIGINALITY/VALUE: The paper illustrates the effectiveness of successful patient and public involvement in research. It also identifies how involvement has developed in a fragmented and uncoordinated way and how it is threatened by a failure to embed it more consistently in research infrastructure.
本文旨在探讨服务使用者和护理者参与国民保健制度（NHS）研究的作用，并描述在三个专业心理健康信托机构中这种参与的性质。它还旨在讨论服务使用者和护理者参与的价值，并呈现服务使用者和研究管理者的观点。
设计/方法/途径：本文回顾了国民保健制度及国民保健制度研究中患者和公众参与的政策与实践。它考察了参与活动的有效性，并利用一个案例来展示患者/服务使用者参与对国民保健制度及参与个体的影响。
本文得出结论，如果研究要支持卫生服务的发展，使其明确反映服务使用者的需求并对服务质量产生积极影响，那么服务使用者的参与至关重要。
服务使用者的参与是国民保健制度在国家和地方层面研发工作的既定要素。卫生部的研究战略“最佳健康的最佳研究”重申了有益于患者的研究的重要性以及服务使用者参与研究过程的重要性。尽管如此，该战略引入的卫生部对研究支持资金的变化可能会无意中导致一些国民保健制度信托机构在为这项重要活动提供资源方面遇到困难。
原创性/价值：本文阐述了患者和公众成功参与研究的有效性。它还指出了参与是以零散且不协调的方式发展起来的，以及由于未能更持续地将其纳入研究基础设施而受到的威胁。
