Ott Mary A, Rosenberger Joshua G, Fortenberry J Dennis
Section of Adolescent Medicine, Department of Pediatrics, Indiana University School of Medicine, 410 West 10th Street, HS 1001, Indianapolis, IN 46202, USA.
J Empir Res Hum Res Ethics. 2010 Jun;5(2):57-64. doi: 10.1525/jer.2010.5.2.57.
An understanding of why parents provide consent for adolescent participation in research on sensitive topics can inform and improve the ethical conduct and review of such research. As part of a longitudinal study of sexually transmitted infections (STIs) in lower-income adolescents, we asked 134 parents why they permitted their daughter to participate, analyzing responses using qualitative methods. Over half described participation benefits, providing reasons such as the study being generally good for their daughters, sex education, someone to talk to, and STI testing. Other reasons included positive interactions and familiarity with research and clinical staff, friend or family member participation, and adolescent autonomy in making the decision to participate. If parents perceived their daughter to be "at risk" in some way, such as for STI or pregnancy, they were more likely to cite participation benefits. These data can be used to make such research more sensitive to family and community needs.
了解父母为何同意青少年参与敏感话题的研究，可为这类研究的伦理行为和审查提供参考并加以改进。作为一项针对低收入青少年性传播感染（STIs）的纵向研究的一部分，我们询问了134位父母他们为何允许女儿参与研究，并采用定性方法分析了他们的回答。超过半数的父母描述了参与研究的益处，给出的理由包括研究总体上对女儿有益、性教育、有倾诉对象以及性传播感染检测。其他理由包括与研究及临床工作人员的积极互动和熟悉程度、朋友或家庭成员参与以及青少年自主决定参与。如果父母认为他们的女儿在某种程度上“处于风险中”，比如感染性传播感染或怀孕，他们更有可能提及参与研究的益处。这些数据可用于使此类研究对家庭和社区需求更加敏感。
