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少“告知”是否能更好地保护孩子?癌症患儿的年龄、信息披露以及所见所感之间的关系。

Does "telling" less protect more? Relationships among age, information disclosure, and what children with cancer see and feel.

作者信息

Claflin C J, Barbarin O A

机构信息

Department of Psychology, University of Michigan, Ann Arbor 48109-1027.

出版信息

J Pediatr Psychol. 1991 Apr;16(2):169-91. doi: 10.1093/jpepsy/16.2.169.

Abstract

Parents report telling young children less about the diagnosis, treatment, and prognosis of cancer than older children and adolescents. This is often based on the desire to spare children from being overwhelmed. 43 children diagnosed with cancer reported on information disclosed to them at diagnosis, their causal attributions, illness-related stress, and coping strategies. Consistent with parental reports, children under 9 years (n = 18) were told less than children 9-14 years (n = 15) and adolescents (n = 10). Young children's reports of illness impact differed from older children and adolescents only with respect to school and social domains. Younger children reported fewer cognitive strategies than older children and adolescents. Even though young children were told much less than older children they reported similar levels of distress. This suggests that nondisclosure fails to mask the salient and distressing aspects of the illness.

摘要

家长们表示,相比年龄较大的儿童和青少年,他们告知年幼儿童有关癌症诊断、治疗和预后的信息较少。这通常是出于不想让孩子不堪重负的愿望。43名被诊断患有癌症的儿童报告了诊断时向他们披露的信息、他们的因果归因、与疾病相关的压力以及应对策略。与家长的报告一致,9岁以下的儿童(n = 18)被告知的信息少于9 - 14岁的儿童(n = 15)和青少年(n = 10)。年幼儿童对疾病影响的报告仅在学校和社交领域与年龄较大的儿童和青少年有所不同。年幼儿童报告的认知策略比年龄较大的儿童和青少年少。尽管年幼儿童被告知的信息比年龄较大的儿童少得多,但他们报告的痛苦程度相似。这表明不透露信息并不能掩盖疾病的显著和令人痛苦的方面。

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