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父母对癌症患儿的预期性悲伤。

Anticipatory grieving among parents living with a child with cancer.

机构信息

Department of Community Health Nursing, Faculty of Nursing, The University of Jordan, Jordan.

出版信息

J Adv Nurs. 2010 Sep;66(9):1980-90. doi: 10.1111/j.1365-2648.2010.05381.x. Epub 2010 Jul 2.

Abstract

AIM

This paper is a report of a comparative study of anticipatory grief of parents of children newly diagnosed with cancer and those whose children were diagnosed 6-12 months earlier.

BACKGROUND

Public perceptions of cancer as a fatal illness persist despite improved prognosis for children. Parents may experience feelings of despair, hopelessness, and worthlessness - the most common psychological expressions of anticipatory grief. With a focus on developing more effective therapeutic intervention, healthcare professionals have developed greater interest in the concept of anticipatory grief.

METHOD

One hundred and forty parents, divided between 'newly diagnosed' and '6-12 months after diagnosis' groups, were recruited in 2006 from two hospitals representative of the healthcare sector in Jordan. Structured interviews were conducted to assess anticipatory grief, using the Marwit and Meuser Caregiver Inventory: Childhood Cancer. Analysis was performed using t-tests.

RESULTS

Fewer than half of the parents in both groups reported being at peace with themselves and their situation in life. Parents of newly diagnosed children reported more severe anticipatory grief responses than those in the second group. No statistically significant differences were found in responses between mothers and fathers.

CONCLUSION

Healthcare professionals should encourage parents to discuss negative feelings related to their child's illness and potential outcome. Hospital policies need to include the provision and promotion of support group services for parents, and nurses should encourage parents to exploit such services.

摘要

目的

本研究报告比较了新近被诊断患有癌症的儿童的父母与那些孩子在 6-12 个月前被诊断出癌症的父母的预期悲痛。

背景

尽管儿童的预后有所改善,但公众仍然认为癌症是一种致命的疾病。父母可能会感到绝望、无助和无价值——这是预期悲痛的最常见心理表现。为了开发更有效的治疗干预措施,医疗保健专业人员对预期悲痛的概念产生了更大的兴趣。

方法

2006 年,我们从两家代表约旦医疗保健部门的医院招募了 140 名父母,分为“新诊断”和“诊断后 6-12 个月”两组。采用 Marwit 和 Meuser 护理人员癌症量表:儿童癌症,通过结构访谈评估预期悲痛。使用 t 检验进行分析。

结果

两组中都不到一半的父母表示对自己和生活状况感到满意。新诊断儿童的父母报告的预期悲痛反应比第二组更严重。母亲和父亲的反应之间没有统计学上的显著差异。

结论

医疗保健专业人员应鼓励父母讨论与孩子疾病和潜在结果相关的负面情绪。医院政策需要包括为父母提供和推广支持小组服务,护士应鼓励父母利用这些服务。

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