Florian V, Krulik T
Department of Psychology, School of Social Work, Bar Ilan University, Ramat Gan, Israel.
Soc Sci Med. 1991;32(11):1291-6. doi: 10.1016/0277-9536(91)90045-e.
To address the problem of loneliness and social support in mothers of chronically ill children, we interviewed 90 mothers, among them 33 whose children suffered from a chronic life-threatening disease and 57 whose children had a chronic illness. In addition, we conducted home interviews with a control group of 92 mothers of healthy children. In responding to questions on the revised UCLA Loneliness Scale and the Norbeck Social Support Questionnaire, the mothers of children with either chronic life-threatening or chronic illness revealed higher loneliness than the mothers of healthy children. Larger social networks and perceived greater support was reported by mothers whose children had a chronic life-threatening disease. In this group, no significant relationship was found between the variables of loneliness and social support; whereas, in the group with chronically ill children, and in the controls, a significant inverse relationship between the two variables was noted. Mothers of children with chronic life-threatening diseases may become subject to higher existential loneliness.
为了解决慢性病患儿母亲的孤独感和社会支持问题，我们采访了90位母亲，其中33位母亲的孩子患有危及生命的慢性病，57位母亲的孩子患有慢性病。此外，我们还对92位健康儿童的母亲组成的对照组进行了家访。在回答修订后的加州大学洛杉矶分校孤独量表和诺贝克社会支持问卷中的问题时，患有危及生命慢性病或慢性病孩子的母亲比健康孩子的母亲表现出更高的孤独感。孩子患有危及生命慢性病的母亲报告称社交网络更大，感受到的支持也更多。在这一组中，未发现孤独感和社会支持变量之间存在显著关系；然而，在慢性病患儿组和对照组中，注意到这两个变量之间存在显著的负相关关系。患有危及生命慢性病孩子的母亲可能会面临更高的生存孤独感。
