Klasnja Predrag, Hartzler Andrea Civan, Unruh Kent T, Pratt Wanda
Information School & DUB Group University of Washington Seattle, WA 98195, USA.
Proc SIGCHI Conf Hum Factor Comput Syst. 2010 Apr;2010:193-202. doi: 10.1145/1753326.1753355.
Patients do considerable information work. Technologies that help patients manage health information so they can play active roles in their health-care, such as personal health records, provide patients with effective support for focused and sustained personal health tasks. Yet, little attention has been paid to patients' needs for information management support while on the go and away from their personal health information collections. Through a qualitative field study, we investigated the information work that breast cancer patients do in such 'unanchored settings'. We report on the types of unanchored information work that patients do over the course of cancer treatment, reasons this work is challenging, and strategies used by patients to overcome those challenges. Our description of unanchored patient information work expands our understanding of patients' information practices and points to valuable design directions for supporting critical but unmet needs.
患者从事大量的信息工作。诸如个人健康记录等有助于患者管理健康信息从而使其能在医疗保健中发挥积极作用的技术，为患者完成有重点且持续的个人健康任务提供了有效的支持。然而，对于患者在外出且远离其个人健康信息收集设备时对信息管理支持的需求却很少有人关注。通过一项定性实地研究，我们调查了乳腺癌患者在这种“无固定场所”所做的信息工作。我们报告了患者在癌症治疗过程中所做的无固定场所信息工作的类型、这项工作具有挑战性的原因，以及患者用来克服这些挑战的策略。我们对无固定场所患者信息工作的描述扩展了我们对患者信息实践的理解，并指出了支持关键但未得到满足的需求的有价值的设计方向。
