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“回归真实生活”:一项关于中风后社区融入过程的定性研究。

'Getting back to real living': A qualitative study of the process of community reintegration after stroke.

机构信息

Department of Kinesiology, McMaster University, Hamilton, Ontario, Canada.

出版信息

Clin Rehabil. 2010 Nov;24(11):1045-56. doi: 10.1177/0269215510375901. Epub 2010 Aug 16.

DOI:10.1177/0269215510375901
PMID:20713436
Abstract

OBJECTIVES

To examine the process of community reintegration over the first year following stroke, from the patient's perspective.

DESIGN

Qualitative, longitudinal, grounded theory study involving ten participants. During the first year post discharge from inpatient rehabilitation, 46 one-on-one semi-structured interviews were conducted with ten participants. Interviews were completed with participants before discharge from inpatient stroke rehabilitation and in their homes at two weeks, three months, six months and one year post discharge. Analysis was guided by grounded theory methods described by Corbin and Strauss.

SUBJECTS

Four women and six men (mean age 59.6 ± 18.0, all with left hemiparesis and without aphasia) who had sustained their first hemispheric stroke and were returning to the community following inpatient rehabilitation.

RESULTS

The process of community reintegration after stroke involved transitioning through a series of goals: gaining physical function, establishing independence, adjusting expectations and getting back to real living. The ultimate challenge for stroke survivors during this process of community reintegration was to create a balance between their expectations of themselves and their physical capacity to engage in meaningful roles.

CONCLUSIONS

Over the first year after stroke, participants reported that the process of community reintegration was marked by ongoing changes in their goals. Formal and informal caregivers need to work with stroke survivors living in the community to facilitate realistic and achievable goal setting. Tools which identify meaningful activities should also be incorporated to provide stroke survivors with the opportunity to contribute and engage with others in the community.

摘要

目的

从患者角度探讨卒中后 1 年内的社区再融入过程。

设计

定性、纵向、扎根理论研究,纳入 10 名参与者。在出院后 1 年内,对 10 名参与者进行了 46 次一对一半结构式访谈。在出院前和出院后 2 周、3 个月、6 个月和 1 年时,在住院卒中康复机构和参与者家中完成访谈。分析遵循 Corbin 和 Strauss 描述的扎根理论方法。

受试者

4 名女性和 6 名男性(平均年龄 59.6±18.0 岁,均为左侧偏瘫且无失语),他们首次发生半球性卒中,在住院康复后返回社区。

结果

卒中后社区再融入过程涉及一系列目标的转变:获得身体功能、建立独立性、调整期望和回归真实生活。在这一社区再融入过程中,卒中幸存者面临的最终挑战是在自己的期望和身体参与有意义角色的能力之间找到平衡。

结论

在卒中后 1 年内,参与者报告社区再融入过程的目标不断变化。居住在社区的卒中幸存者的正式和非正式照顾者需要共同努力,为他们设定现实和可实现的目标。还应纳入确定有意义活动的工具,为卒中幸存者提供在社区中做出贡献和与他人互动的机会。

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