Department of Biomedical Informatics, Columbia University, New York, NY 10032, USA.
Patient Educ Couns. 2011 Aug;84(2):e9-12. doi: 10.1016/j.pec.2010.07.013. Epub 2010 Aug 17.
To assess the attitudes of persons living with HIV/AIDS (PLWH) towards having their personal health information (PHI) stored and shared electronically.
PLWH (n = 93) in New York City completed surveys using audio computer-assisted self-interview (ACASI) that assessed willingness to share their PHI with various people and entities via a secure electronic network. The survey also included questions on satisfaction with and trust of health care providers, current health, HIV-associated stigma, and frequency of internet access. Data were analyzed with descriptive and multivariate statistical methods.
The majority (84%) of individuals were willing to share their PHI with clinicians involved in their care. Fewer individuals (39%) were as willing to share with non-clinical staff. Willingness to share PHI was positively associated with trust and respect of clinicians.
PLWH accepted clinicians' need for access to accurate information. Patients' trust in their primary care providers highlights the importance of the clinician-patient relationship which can be used to engage patients support for health information exchange initiatives.
As electronic storage and sharing of PHI is increasing, clinicians and PLWH should discuss patients' attitudes towards sharing PHI electronically.
评估艾滋病毒/艾滋病感染者（PLWH）对其个人健康信息（PHI）进行电子存储和共享的态度。
纽约市的 PLWH（n=93）通过音频计算机辅助自我访谈（ACASI）完成了调查，该调查评估了他们通过安全的电子网络与各种人员和实体共享其 PHI 的意愿。该调查还包括对医疗服务提供者的满意度和信任度、当前健康状况、与 HIV 相关的耻辱感以及互联网访问频率的问题。使用描述性和多变量统计方法对数据进行分析。
大多数（84%）个体愿意与参与其护理的临床医生共享其 PHI。较少的个体（39%）愿意与非临床人员共享。愿意共享 PHI 与对临床医生的信任和尊重呈正相关。
PLWH 接受临床医生对获取准确信息的需求。患者对初级保健提供者的信任突显了医患关系的重要性，这可以用于促使患者支持健康信息交换计划。
随着 PHI 的电子存储和共享不断增加，临床医生和 PLWH 应讨论患者对电子共享 PHI 的态度。
