Hall Heather R, Graff J Carolyn
Maternal Child Nursing Department, University of South Alabama, Mobile, Alabama, USA.
Issues Compr Pediatr Nurs. 2010;33(4):187-204. doi: 10.3109/01460862.2010.528644.
A pilot study was conducted using a focus group interview with parents of children with autism to provide parents with the opportunity to express their concerns related to parenting a child with autism and to discuss strategies parents can use to manage these challenges. Parents' desire and need for information related to autism is evident. Parents' identified supports and resources in need of expansion and development to assist with their child's needs. These findings support previous research with families communicating a need for partnership with healthcare providers. Nurses are often the first contact with children with autism and their families; they can support the partnership between parents and healthcare professionals. Using the Double ABCX Model of family behavior as the conceptual framework, a study investigating the findings of this pilot study has been completed.
开展了一项试点研究,采用焦点小组访谈法,与自闭症儿童的家长进行交流,让家长有机会表达他们在养育自闭症孩子方面的担忧,并讨论家长可用来应对这些挑战的策略。家长对自闭症相关信息的渴望和需求显而易见。家长指出了需要扩大和发展的支持与资源,以满足孩子的需求。这些研究结果支持了此前针对家庭进行的研究,这些研究表明家庭需要与医疗服务提供者建立伙伴关系。护士通常是自闭症儿童及其家庭的首个接触对象;他们可以支持家长与医疗专业人员之间的伙伴关系。以家庭行为的双ABCX模型作为概念框架,一项对该试点研究结果进行调查的研究已完成。