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一项基于人群的纵向研究中的自我报告和登记报告癌症情况。

Self- and registry-reported cancer in a population-based longitudinal study.

作者信息

Klein Barbara E K, Lee Kristine E, Moss Scot E, Trentham-Dietz Amy, Klein Ronald

机构信息

University of Wisconsin-Madison, School of Medicine and Public Health, Department of Ophthalmology and Visual Sciences, 610 N Walnut St, 4th Fl WARF, Madison, WI 53726-2336, USA.

出版信息

WMJ. 2010 Oct;109(5):261-6.

PMID:21066931
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3058779/
Abstract

PURPOSE

To evaluate the concordance of cancer diagnosis from self- and registry reports.

METHODS

Self-reported diagnosis information from participants in a cohort study was compared with linkage data from the Wisconsin Cancer Reporting System.

RESULTS

Overall, there was good agreement between self- and registry-reported cancers, with 90% of all matches being considered an exact match. Concordance varied by cancer site; agreement was excellent for breast (85.4%) and prostate (78.9%) cancers.

CONCLUSIONS

While self-reported cancer diagnoses for some cancers such as breast and prostate cancer are important sources of information and may be reliable substitutes when registry data are incomplete or not available, a combination of self and registry reports with mortality information may yield the most accurate information about cancer for purposes of health care planning and conducting epidemiologic studies.

摘要

目的

评估自我报告与登记报告中癌症诊断的一致性。

方法

将队列研究参与者的自我报告诊断信息与威斯康星州癌症报告系统的关联数据进行比较。

结果

总体而言,自我报告与登记报告的癌症之间有良好的一致性,所有匹配中有90%被认为是完全匹配。一致性因癌症部位而异;乳腺癌(85.4%)和前列腺癌(78.9%)的一致性极佳。

结论

虽然自我报告的某些癌症(如乳腺癌和前列腺癌)诊断是重要的信息来源,并且在登记数据不完整或无法获得时可能是可靠的替代方法,但将自我报告和登记报告与死亡率信息相结合,可能会为医疗保健规划和开展流行病学研究提供关于癌症的最准确信息。

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