Suppr超能文献

为患有脑瘫或脊柱裂的青少年提供计算机介导的支持。

Computer-mediated support for adolescents with cerebral palsy or spina bifida.

作者信息

Barnfather Alison, Stewart Miriam, Magill-Evans Joyce, Ray Lynne, Letourneau Nicole

机构信息

Social Support Research Program, University of Alberta, Edmonton, AB, Canada.

出版信息

Comput Inform Nurs. 2011 Jan-Feb;29(1):24-33; quiz 34-5. doi: 10.1097/NCN.0b013e3181f9db63.

Abstract

Social support plays a key role in improving health outcomes for children with chronic conditions. Internet connections are an important component of adolescents' social networks and may overcome geographic and environmental barriers for those with disabilities. This article focuses on the processes associated with a 6-month online support intervention for adolescents with cerebral palsy or spina bifida. Specifically, the purpose was to determine the extent to which adolescents used an online peer support intervention, the processes used, and the perceived benefits and satisfaction with the intervention. Five peer mentors with the same disabilities provided information, affirmation, and emotional support. The online environment created a safe space to foster reciprocal interpersonal connections and appropriate social comparison. Two-thirds of the participants viewed the computer-mediated support intervention as fun. Factors influencing the perceived utility of the intervention included typing speed, cognitive skills, and perceived need for additional support. Girls were significantly more likely to contribute messages than were boys. Peer mentors wished that this type of support program had been available when they were teens, appreciated the supportive elements, and reported learning from the teen participants. Health professionals wanting to implement online support need to consider the age and ability levels of participants and the optimal length and format of the support program.

摘要

社会支持在改善慢性病患儿的健康状况方面起着关键作用。互联网连接是青少年社交网络的重要组成部分,对于残疾青少年而言,它可能克服地理和环境障碍。本文聚焦于一项针对患有脑瘫或脊柱裂青少年的为期6个月的在线支持干预相关过程。具体而言,目的是确定青少年使用在线同伴支持干预的程度、所采用的过程以及对该干预的感知益处和满意度。五名患有相同残疾的同伴导师提供信息、肯定和情感支持。在线环境营造了一个安全的空间,以促进相互的人际联系和适当的社会比较。三分之二的参与者认为计算机介导的支持干预很有趣。影响对干预感知效用的因素包括打字速度、认知技能以及对额外支持的感知需求。女孩比男孩更有可能发送信息。同伴导师希望自己十几岁时能有这种类型的支持项目,对支持元素表示赞赏,并报告从青少年参与者身上学到了东西。希望实施在线支持的健康专业人员需要考虑参与者的年龄和能力水平以及支持项目的最佳时长和形式。

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