Becker Heather, Mackert Mike, Kang Sook Jung
School of Nursing, The University of Texas at Austin, Austin, TX 78701, USA.
Comput Inform Nurs. 2013 Mar;31(3):107-14. doi: 10.1097/NXN.0b013e3182771895.
Although there has been research on the use of e-health for cancer patients and those living with disabilities, no interventions focus on cancer survivors who had a disabling condition prior to their cancer. Therefore, we developed and piloted the feasibility of the online health-promotion program LiveAble. Based on a theoretically driven health-promotion program previously shown to be effective among people with various chronic conditions, LiveAble was adapted to be an e-heath intervention for cancer survivors with preexisting disabilities. Eleven cancer survivors reviewed LiveAble and provided feedback. The participants' average age was 54 years. Most had neuromuscular impairments prior to their cancer; about half were breast cancer survivors. Average scores on the Self-efficacy for Health Practices Scale increased. Participants rated LiveAble useful, attractively presented, and relevant to people with disabilities. Their feedback also suggested areas for change, such as a system that was easier to navigate and more individualized. Only 51% of these participants agreed that LiveAble motivated them to take action to improve their health. To turn information into action, participants may need additional assistance and encouragement. Although preliminary results were promising, future efforts should determine the efficacy of LiveAble with larger and more diverse groups of survivors.
尽管已有关于电子健康在癌症患者和残疾人士中的应用研究,但尚无干预措施聚焦于癌症幸存者中那些在患癌之前就有残疾状况的人群。因此,我们开发并试点了在线健康促进项目LiveAble的可行性。基于先前已证明在各种慢性病患者中有效的理论驱动型健康促进项目,LiveAble被改编为针对先前就有残疾的癌症幸存者的电子健康干预措施。11名癌症幸存者对LiveAble进行了评估并提供了反馈。参与者的平均年龄为54岁。大多数人在患癌之前就有神经肌肉损伤;约一半是乳腺癌幸存者。健康行为自我效能量表的平均得分有所提高。参与者认为LiveAble有用、呈现形式吸引人且与残疾人士相关。他们的反馈也指出了需要改进的方面,比如一个更易于操作且更具个性化的系统。这些参与者中只有51%同意LiveAble促使他们采取行动改善健康。为了将信息转化为行动,参与者可能需要额外的帮助和鼓励。尽管初步结果很有希望,但未来的努力应确定LiveAble在规模更大、更多样化的幸存者群体中的效果。