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评估自闭症谱系障碍儿童主要照顾者的健康相关生活质量。

Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders.

机构信息

Department of Pharmacy Administration, University of Mississippi, University, MS 38677, USA.

出版信息

J Autism Dev Disord. 2011 Sep;41(9):1214-27. doi: 10.1007/s10803-010-1140-6.

Abstract

The impact of caring for a child with autism on caregivers' health-related quality of life (HRQOL) is not fully understood. The objective of this study was to compare the HRQOL scores of caregivers of children with autism to those of the general US population and to identify the factors that influence HRQOL. Caregivers of children with autism had lower HRQOL scores than the general population. Care recipient level of functional impairment, social support, use of maladaptive coping, and burden influenced caregiver mental HRQOL. Care recipient extent of behavioral problems and social support influenced caregiver physical HRQOL. Findings emphasize the use of multi-pronged intervention approach that incorporates components aimed at improving family functioning, increasing support services, and assisting caregivers in developing healthy coping skills.

摘要

照顾自闭症儿童对照顾者的健康相关生活质量(HRQOL)的影响尚不完全清楚。本研究的目的是比较自闭症儿童照顾者的 HRQOL 评分与美国普通人群的评分,并确定影响 HRQOL 的因素。自闭症儿童的照顾者的 HRQOL 评分低于普通人群。照顾对象的功能障碍程度、社会支持、使用不良应对方式和负担会影响照顾者的心理 HRQOL。照顾对象的行为问题程度和社会支持会影响照顾者的生理 HRQOL。研究结果强调采用多管齐下的干预方法,包括旨在改善家庭功能、增加支持服务和帮助照顾者培养健康应对技能的措施。

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