Porter Ann, Creed Peter, Hood Michelle, Ching Teresa Y C
School of Applied Psychology, Griffith University.
National Acoustic Laboratories.
J Deaf Stud Deaf Educ. 2018 Oct 1;23(4):295-306. doi: 10.1093/deafed/eny019.
Parents or caregivers of children who are deaf or hard of hearing are required to make complex and rational decisions soon after the confirmation of hearing loss. Ways of facilitating decision-making have been a focus within the healthcare sector for two decades and shared decision-making is now widely viewed as the standard for good clinical care. A systematic literature review was undertaken to identify the extent to which the principles of shared decision-making and informed choice have been implemented for parents when they make decisions related to their children with permanent hearing loss. Five databases were searched for peer-reviewed papers describing the results of original research published from 2000 to 2017, yielding 37 relevant papers. Studies were reviewed using the three phases of decision-making-information exchange, deliberation, and implementation. Two decisions dominated these studies-implantable devices and communication modality. Most papers dealt with decision-making in the context of bilateral hearing loss, with only one study focusing on unilateral hearing loss. The review identified gaps where further research is needed to ensure the lessons learnt in the broader decision-making literature are implemented when parents make decisions regarding their child who is deaf or hard of hearing.
失聪或听力有障碍儿童的父母或照料者在孩子听力损失确诊后不久就需要做出复杂且合理的决定。二十年来，促进决策的方法一直是医疗保健领域的重点，而共同决策现在被广泛视为优质临床护理的标准。我们进行了一项系统的文献综述，以确定在父母为永久性听力损失的孩子做出决策时，共同决策和知情选择原则在多大程度上得到了实施。我们在五个数据库中搜索了描述2000年至2017年发表的原创研究结果的同行评审论文，共获得37篇相关论文。我们使用决策的三个阶段——信息交流、审议和实施——对研究进行了审查。两项决策在这些研究中占主导地位——可植入设备和沟通方式。大多数论文探讨的是双侧听力损失背景下的决策，只有一项研究关注单侧听力损失。该综述发现了一些差距，需要进一步研究以确保在父母为失聪或听力有障碍的孩子做出决策时，能够应用从更广泛的决策文献中学到的经验教训。
