University of Michigan at Ann Arbor, Ann Arbor, MI 48109-2029, USA.
Epilepsy Behav. 2010 Nov;19(3):255-63. doi: 10.1016/j.yebeh.2010.08.033.
Epilepsy clinical, academic, and human service professionals (N = 101) were surveyed regarding the challenges people with epilepsy face managing their condition. 30% of the respondents had personal experience with epilepsy. Interviews were transcribed and coded into themes. Response differences by profession and personal experience were examined using chi-squared tests. The two greatest challenges reported most frequently for people with epilepsy were finding high quality health care and managing psychological and emotional effects. The two most important epilepsy outcomes were seizure control and quality of life. The two greatest challenges facing clinicians were too little time with patients and limited clinical focus. The two main weaknesses in the field were insufficient research and narrow approaches to addressing epilepsy. Significant differences in responses across professions were evident as were differences according to personal experience with epilepsy. Few clinicians cited quality of care as a major challenge (p<0.0001) compared to other professions. Few respondents with personal experience with epilepsy cited stigma as a challenge (p = 0.006).
癫痫临床、学术和人类服务专业人员（N=101）接受了一项关于癫痫患者在管理病情方面面临挑战的调查。30%的受访者有癫痫个人经历。访谈记录被转录并编码为主题。使用卡方检验检查了专业和个人经验的反应差异。癫痫患者报告最频繁的两个最大挑战是寻找高质量的医疗保健和管理心理和情绪影响。两个最重要的癫痫结果是癫痫发作控制和生活质量。临床医生面临的两个最大挑战是与患者相处的时间太少和临床重点有限。该领域的两个主要弱点是研究不足和解决癫痫问题的方法狭窄。不同专业的反应存在显著差异，癫痫个人经历也存在差异。与其他专业相比，很少有临床医生将医疗质量作为主要挑战（p<0.0001）。很少有个人癫痫经历的受访者将耻辱感视为挑战（p=0.006）。
