Department of Oncology, Lund University Hospital, S-221 85 Lund, Sweden.
Eur J Oncol Nurs. 2011 Dec;15(5):390-7. doi: 10.1016/j.ejon.2010.11.004. Epub 2010 Dec 15.
To investigate how life situation by persons with advanced colorectal cancer and their partners is affected by living with the disease and its treatment.
Separate, individual interviews were made with persons with advanced colorectal cancer (n = 12) and their partners (n = 9) about how their daily lives were affected by the disease and its treatment. The verbatim transcripts were analysed using content analysis.
Living with the illness of advanced colorectal cancer was experienced to be: being inside or outside the healthcare system, striving for normality and becoming conscious of life's value and vulnerability. Living as a partner was experienced as living in an altered relation and as living in the shadow of the disease.
When one in a partner relation suffers from colorectal cancer, it changes life and life perspective for both partners. Partners need to be invited to and involved in the care. Cancer nursing should focus on supporting the strive for normality in daily life, as the disease and its' treatment may last for a longer period of time. Supporting the partner may benefit the person with cancer as well, to cope along the illness trajectory.
调查晚期结直肠癌患者及其伴侣的生活状况如何受到疾病及其治疗的影响。
对 12 名晚期结直肠癌患者（n=12）及其伴侣（n=9）分别进行了单独的个体访谈，了解他们的日常生活受到疾病及其治疗的影响。对逐字记录进行了内容分析。
患有晚期结直肠癌被体验为：在医疗保健系统内外，努力保持正常状态，意识到生命的价值和脆弱性。作为伴侣生活被体验为生活在一种改变了的关系中，并生活在疾病的阴影下。
当伴侣关系中的一方患有结直肠癌时，这会改变双方的生活和生活视角。需要邀请伴侣参与护理。癌症护理应侧重于支持日常生活中的正常化努力，因为疾病及其治疗可能会持续较长时间。支持伴侣也可能有益于癌症患者，帮助他们应对疾病轨迹。
