Department of Surgery, Örebro University Hospital, School of Health and Medical Sciences, Örebro University and Centre for Health Care Sciences Örebro Country Council, Örebro, Sweden.
J Clin Nurs. 2012 Feb;21(3-4):555-63. doi: 10.1111/j.1365-2702.2011.03830.x. Epub 2011 Aug 26.
To describe the experience of life the first year after surgery from the perspective of persons treated for colorectal cancer and their partners.
Colorectal cancer is a common cancer form, and treatment can cause unpleasant side effects such as sexual dysfunction and bowel problems. Partners struggle to keep family life normal and provide support. Little is known about couples' experiences a year after treatment for colorectal cancer.
Qualitative descriptive.
Individual semi-structured interviews with 13 persons treated for colorectal cancer and their partners, a total of 26 participants.
One theme was identified in the study; 'Life is back to normal and yet not': participants described living a normal but different life than before. Three subthemes were identified; 'Life has a shadow of death', 'The treated body sets the rules' and 'To share or not share the illness'.
Findings showed that both the patients' and their partners' lives were influenced by uncertainty and the condition of the patient. Attitudes varied towards sharing the illness. It was found that information needs varied both within and between couples. A future challenge to healthcare personnel is the obligation to meet the needs of both patients and their partners on the illness trajectory and recovery after treatment for colorectal cancer.
Findings enhance the understanding of the impact of colorectal cancer on both patients and partners. Healthcare personnel need to assess both the patient's and partner's need for information, support and assistance. Support groups could be an effective tool for providing information, communication and support. Future studies are needed to evaluate such groups.
从接受结直肠癌治疗的患者及其伴侣的角度描述手术后第一年的生活体验。
结直肠癌是一种常见的癌症形式，治疗可能会导致性功能障碍和肠道问题等不适副作用。伴侣努力维持家庭生活的正常，并提供支持。对于接受结直肠癌治疗一年后夫妻的经历知之甚少。
定性描述。
对 13 名接受结直肠癌治疗的患者及其伴侣进行了 26 名参与者的个体半结构化访谈。
研究中确定了一个主题；“生活恢复正常，但又不同了”：参与者描述了一种正常但与以前不同的生活。确定了三个副标题；“生活笼罩着死亡的阴影”、“受治疗的身体制定规则”和“分享或不分享疾病”。
研究结果表明，患者及其伴侣的生活都受到不确定性和患者病情的影响。对分享疾病的态度因人而异。发现夫妇内部和之间的信息需求存在差异。医疗保健人员未来面临的挑战是有义务满足患者和伴侣在结直肠癌治疗轨迹和康复过程中的需求。
研究结果增强了对结直肠癌对患者和伴侣的影响的理解。医疗保健人员需要评估患者和伴侣对信息、支持和帮助的需求。支持小组可能是提供信息、沟通和支持的有效工具。需要进一步研究此类小组。
