School of Nursing and Midwifery, Keele University, UK.
Palliat Med. 2011 Mar;25(2):117-24. doi: 10.1177/0269216310383738. Epub 2011 Jan 12.
Care of the family is integral to palliative care, but little attention has been paid to the way nurses, or other healthcare professionals, are responding to the needs of families who are concerned about whether their family history of cancer is associated with an inherited genetic predisposition. This paper discusses how palliative care nurses perceive the care needs of patients with a family history of cancer. Data were collected through recorded, semi-structured interviews with 10 nurses who had worked in specialist palliative care. The findings show that there are cogent arguments and concerns about raising the issue of an inherited genetic predisposition at the end of life (especially when the patient is close to death and there is a lack of knowledge about genetics). Nevertheless, exemplar cases are used to illustrate the reasons why it is important that nurses working in specialist palliative care settings are aware of the needs of this patient group. The paper highlights that nurses not only need an appropriate knowledge base but also an insight of what can be achieved when supporting patients with a family history of cancer.
家庭护理是姑息治疗不可或缺的一部分，但很少有人关注护士或其他医疗保健专业人员如何回应那些担心家族癌症史是否与遗传易感性有关的家庭的需求。本文讨论了姑息治疗护士如何感知有家族癌症史的患者的护理需求。研究数据通过对 10 名在专科姑息治疗中心工作的护士进行记录式半结构化访谈收集。研究结果表明，在生命末期提出遗传性易感性问题存在合理的论点和担忧（特别是当患者接近死亡且对遗传学缺乏了解时）。尽管如此，通过示例案例说明了为什么在专科姑息治疗环境中工作的护士了解这一患者群体的需求非常重要。本文强调，护士不仅需要有适当的知识库，还需要了解在支持有家族癌症史的患者时可以取得哪些成果。
