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本文引用的文献

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The Mediating Role of Psychological Capital in the Relationship Between Family Sense of Coherence and Caregiver Stress Among Parents of Children With Autism Spectrum Disorder.《自闭症谱系障碍儿童父母家庭和谐感与 caregiver 压力关系中的心理资本中介作用》
Int J Ment Health Nurs. 2024 Dec;33(6):2157-2169. doi: 10.1111/inm.13383. Epub 2024 Jun 21.
2
Anxiety disorders in children and adolescents: A summary and overview of the literature.儿童和青少年焦虑障碍:文献综述概述。
Behav Res Ther. 2023 Sep;168:104376. doi: 10.1016/j.brat.2023.104376. Epub 2023 Jul 20.
3
Neurodevelopmental impairments in children with septo-optic dysplasia spectrum conditions: a systematic review.儿童视神经发育不良谱系疾病的神经发育障碍:系统评价。
Mol Autism. 2023 Jul 25;14(1):26. doi: 10.1186/s13229-023-00559-0.
4
Father Involvement and Maternal Stress: The Mediating Role of Coparenting.父亲参与和母亲压力:共同养育的中介作用。
Int J Environ Res Public Health. 2023 Apr 10;20(8):5457. doi: 10.3390/ijerph20085457.
5
Language in autism: domains, profiles and co-occurring conditions.自闭症中的语言:领域、特征及伴发状况。
J Neural Transm (Vienna). 2023 Mar;130(3):433-457. doi: 10.1007/s00702-023-02592-y. Epub 2023 Mar 16.
6
The predictive role of coping styles and sense of coherence in the post-traumatic growth of mothers with disabled children: a cross-sectional study.应对方式和心理一致感对残疾儿童母亲创伤后成长的预测作用:一项横断面研究。
BMC Psychiatry. 2022 Nov 15;22(1):708. doi: 10.1186/s12888-022-04357-5.
7
Novel Genetic Diagnoses in Septo-Optic Dysplasia.先天性视-隔发育不良的新遗传学诊断。
Genes (Basel). 2022 Jun 28;13(7):1165. doi: 10.3390/genes13071165.
8
The Mediating Effect of Parenting Stress on the Relationship Between Social Support and Quality of Life in Parents of Children With Autistic Spectrum Disorder: A Meta-Analytic Structural Equation Modeling.育儿压力在自闭症谱系障碍儿童家长的社会支持与生活质量关系中的中介作用:一项元分析结构方程模型研究
Front Psychiatry. 2022 Feb 17;13:713620. doi: 10.3389/fpsyt.2022.713620. eCollection 2022.
9
The importance of assessing parent stress in families with children with severe neuromotor and intellectual disability - a pilot study.评估严重神经运动和智力残疾儿童家庭中父母压力的重要性——一项初步研究。
Appl Neuropsychol Child. 2022 Oct-Dec;11(4):804-810. doi: 10.1080/21622965.2021.1971525. Epub 2021 Sep 7.
10
How Couple's Relationship Lasts Over Time? A Model for Marital Satisfaction.夫妻关系如何随着时间的推移而持久?婚姻满意度模型。
Psychol Rep. 2022 Jun;125(3):1601-1627. doi: 10.1177/00332941211000651. Epub 2021 Mar 18.

有特殊教育需求儿童的父母的婚姻凝聚力与感知压力:对夫妻关系动态影响的研究

Marital Cohesion and Perceived Stress in Parents of Children with Special Educational Needs: A Study of the Impact on Couple Dynamics.

作者信息

Figueiredo Sandra, Pereira Raquel

机构信息

Foundation for Science and Technology, Universidade Autónoma de Lisboa, Palácio Dos Condes Do Redondo, R. de Santa Marta 56, 1169-023 Lisbon, Portugal.

出版信息

Children (Basel). 2025 Mar 29;12(4):436. doi: 10.3390/children12040436.

DOI:10.3390/children12040436
PMID:40310057
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12025766/
Abstract

BACKGROUND/OBJECTIVES: The presence of a child with special educational needs (SENs) necessitates that both the child and their family engage in adaptive processes and develop resilience in response to the developmental challenges that arise following an SENs diagnosis. Furthermore, it is critical to examine the impact of such a diagnosis on parental marital cohesion. Despite the recognized importance of this issue, the effects of SENs diagnoses on marital cohesion and flexibility, and the perceived stress experienced by parents, remain underexplored in the extant literature.

METHODS

Forty-seven participants (23 parents of children diagnosed with SENs and 24 parents of typically developing children, all aged between 32 and 60 years) completed this study. The instruments used were the Family Cohesion and Flexibility Evaluation Scale (couple version) and the Perceived Stress Scale.

RESULTS

No direct relationship was found between the SENs diagnosis and marital cohesion or flexibility. Furthermore, the perceived stress did not mediate the association between these variables. Nonetheless, both groups exhibited high levels of perceived stress.

CONCLUSIONS

These results underscore the necessity for further investigation into the role of emotional support and coping strategies in alleviating the perceived stress among parents and caregivers of children with SENs. A deeper understanding of these factors is essential for the development of interventions aimed at promoting parental well-being and enhancing the quality of caregiving.

摘要

背景/目的:家中有特殊教育需求(SENs)儿童,这就要求孩子及其家庭都要经历适应过程,并培养适应力,以应对特殊教育需求诊断后出现的发展挑战。此外,研究这种诊断对父母婚姻凝聚力的影响至关重要。尽管这个问题已得到公认,但在现有文献中,特殊教育需求诊断对婚姻凝聚力和灵活性的影响,以及父母所感受到的压力,仍未得到充分探讨。

方法

47名参与者(23名被诊断为有特殊教育需求儿童的父母和24名发育正常儿童的父母,年龄均在32至60岁之间)完成了本研究。使用的工具是家庭凝聚力和灵活性评估量表(夫妻版)以及感知压力量表。

结果

未发现特殊教育需求诊断与婚姻凝聚力或灵活性之间存在直接关系。此外,感知压力并未介导这些变量之间的关联。尽管如此,两组的感知压力水平都很高。

结论

这些结果强调了有必要进一步研究情感支持和应对策略在减轻特殊教育需求儿童父母及照料者所感受到的压力方面的作用。深入了解这些因素对于制定旨在促进父母幸福感和提高照料质量的干预措施至关重要。