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灾难后开展研究:伦理考量。

Conducting research in the aftermath of disasters: ethical considerations.

机构信息

School of Nursing, Dublin City University, Glasnevin, Dublin, Ireland.

出版信息

J Evid Based Med. 2010 May;3(2):65-75. doi: 10.1111/j.1756-5391.2010.01076.x. Epub 2010 Apr 23.

Abstract

Disaster research focuses on the impact disasters have on people and social structures. Planning for and responding to disasters require evidence to guide decision-makers. The need for such evidence provides an ethical mandate for the conduct of sound disaster research. Disaster research ethics draws attention to ethical issues common to all research involving human subjects. However, disaster research involves a number of distinctive factors, including the degree of devastation affecting participants and the urgency often involved in initiating research projects. Such factors generate ethical issues not usually encountered with other types of research, and create tensions that must be taken into account in designing and conducting disaster research so that it attains the highest ethical standards. An overview of general research ethics issues is presented here in the context of disaster research. As with all research involving humans, protection of participants and minimizing harm is the highest ethical priority. Other ethical issues include formal ethical approval, informed consent, balancing burdens and benefits, participant recruitment, coercion, the role of compensation, and conflicts of interest. Using examples from specific studies, some of the distinctive features of disaster research ethics are discussed. These include cross-cultural collaboration and communication, vulnerability of participants arising from the degree of devastation, avoiding exploitation of disaster victims, and protecting researchers. The article concludes with some of the major challenges facing disaster research ethics and how they might be addressed.

摘要

灾难研究侧重于灾害对人和社会结构的影响。灾害规划和应对需要证据来指导决策者。这种证据的需求为进行合理的灾难研究提供了伦理授权。灾难研究伦理学引起了人们对涉及人类受试者的所有研究共有的伦理问题的关注。然而,灾难研究涉及一些独特的因素,包括影响参与者的破坏程度以及通常涉及启动研究项目的紧迫性。这些因素产生了通常在其他类型的研究中不会遇到的伦理问题,并产生了在设计和进行灾难研究时必须考虑的紧张局势,以使研究达到最高的伦理标准。本文在灾难研究的背景下介绍了一般研究伦理问题的概述。与所有涉及人类的研究一样,保护参与者和将伤害最小化是最高的伦理优先事项。其他伦理问题包括正式的伦理批准、知情同意、权衡负担和利益、参与者招募、胁迫、赔偿的作用以及利益冲突。本文使用来自具体研究的例子讨论了灾难研究伦理学的一些独特特征。这些特征包括跨文化合作和交流、参与者因破坏程度而产生的脆弱性、避免对灾难受害者的剥削以及保护研究人员。文章最后讨论了灾难研究伦理学面临的一些主要挑战以及如何解决这些挑战。

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