Wicking Dementia Research and Education Centre, Menzies Research Institute, University of Tasmania, Australia.
Sociol Health Illn. 2011 Sep;33(6):899-913. doi: 10.1111/j.1467-9566.2010.01332.x. Epub 2011 Mar 4.
Community services for carers of people with dementia can assist in relieving caregiver burden and delay the institutionalisation of the person with dementia. Under some conditions, however, engagement with dementia services may produce unintended negative consequences, resulting in increased confusion and a reduction of agency for carers. Drawing on an analysis of three salient aspects of caregiver identities, this paper examines specific instances and consequences of 'ambiguous gain', defined as 'a putative or demonstrated benefit that, as an unintended outcome, results in increased uncertainty and a consequent reduction of agency or wellbeing at the level of individual or collective identity'. The paper concludes with a discussion of implications for policy and practice.
社区为痴呆症患者的照顾者提供服务，可以帮助减轻照顾者的负担，并延迟痴呆症患者的入院治疗。然而，在某些情况下，与痴呆症服务的接触可能会产生意想不到的负面后果，导致照顾者的困惑增加和代理权减少。本文通过对照顾者身份的三个显著方面的分析，探讨了“模糊收益”的具体实例和后果，将其定义为“一种假定或证明的利益，作为一个意外的结果，导致个人或集体身份层面的不确定性增加，进而导致代理权或幸福感降低”。本文最后讨论了对政策和实践的影响。
