Department of Health Psychology, School of Nursing, University of Alicante, Spain.
J Adv Nurs. 2011 Aug;67(8):1790-9. doi: 10.1111/j.1365-2648.2010.05607.x. Epub 2011 Mar 7.
This paper is a report of a study conducted to uncover the strategies that women caregivers of relatives with advanced dementia use to rest from care-giving.
Respite consists of activities and situations that briefly take caregivers away from their care-giving responsibilities. Qualitative studies are focusing on respite as an outcome and are deepening our knowledge about the experience of caregivers' rest. The strategies that caregivers use to relieve the burden, however, are not fully known.
A qualitative approach was used influenced by the work of Charmaz's constructivist grounded theory. Twenty-three female primary caregivers of relatives with advanced dementia participated in semi-structured interviews between November 2006 and March 2009 in Spain. Data collection was guided by the emergent analysis and ceased when no more relevant variations in the categories were found.
Taking leave from the life of care-giving is the general strategy that caregivers use to rest from their caregivers selves. The key issue is to be able to connect with a different world from that of care-giving. Three strategies that participants use to leave the life of care-giving follow: (1) Connecting with one's own life, (2) building moments of life in common with the sick relative and (3) keeping in touch with care-giving.
To have respite from care-giving implies distancing oneself from the care-giving identity and reveals the caregiver's need for alternative selves to have true breaks from caring. Nurses are in a unique situation to foster respite as an inner experience.
本研究旨在揭示照顾晚期痴呆亲属的女性照顾者使用何种策略来从照护工作中获得休息。
暂息是指让照顾者暂时脱离照护责任的活动和情况。定性研究关注暂息作为结果，并加深了我们对照顾者休息体验的了解。然而，照顾者用来减轻负担的策略并不完全为人所知。
采用受 Charmaz 建构主义扎根理论影响的定性方法。2006 年 11 月至 2009 年 3 月期间，在西班牙，23 名照顾晚期痴呆亲属的女性主要照顾者参加了半结构式访谈。数据收集由涌现分析指导，当类别中不再发现更多相关变化时停止。
脱离照护生活是照顾者从照顾自我中获得休息的总体策略。关键问题是能够与照护生活不同的世界建立联系。参与者使用的三种脱离照护生活的策略包括：（1）与自己的生活建立联系，（2）与患病亲属共同建立生活时刻，（3）保持与照护的联系。
要从照护工作中获得休息，就意味着要与照护身份保持一定距离，并揭示出照顾者需要替代自我，以便真正从照顾中解脱出来。护士处于促进暂息作为一种内在体验的独特地位。
