Department of Health Services, School of Public Health, University of Washington, Seattle, Washington, USA.
Otolaryngol Head Neck Surg. 2011 Jul;145(1):137-45. doi: 10.1177/0194599810397604.
Quality-of-life (QOL) measures targeting youth with hearing loss are useful in population needs assessment, educational placement, and program design and evaluation. This study assesses the cross-sectional validity of the Youth Quality of Life Instrument-Deaf and Hard of Hearing Module (YQOL-DHH). STUDY DESIGN. Instrument development and cross-sectional survey.
Recruitment through schools, professional organizations, clinics, and programs for youth who are deaf or hard of hearing. SUBJECTS AND METHODS. Thirty-five candidate items were administered to 230 adolescents aged 11 to 18 years: 49% female, 61% white, 11% mild hearing loss, 20% moderate/moderate-severe, 41% severe/profound, and 28% with cochlear implants. Participants completed individual or group-administered questionnaires by paper and pencil (58%), Web-based English (29%), American Sign Language (ASL) or Pidgin Signed English (PSE) (9%) on DVD, or interviewer-supervised ASL or PSE DVD (4%). The Children's Depression Inventory (CDI-S) was also completed. Factor structure, reliability, construct validity, and respondent burden were assessed.
Thirty-two items were retained in the final instrument covering 3 domains: self-acceptance/advocacy (14 items, Cronbach α = 0.84), perceived stigma (8 items, Cronbach α = 0.85), and participation (10 items, Cronbach α = 0.86). QOL was not significantly associated with hearing level. One-week test-retest coefficients were acceptable: self-acceptance/ advocacy (0.70), perceived stigma (0.78), and participation 0.92). As predicted, the total CDI-S score was associated in the appropriate direction (P < .0001) with all YQOL-DHH domains. Time to complete the paper-and-pencil version was 12 minutes.
The YQOL-DHH shows good reliability and validity for assessing hearing-specific QOL in adolescents.
针对听力损失青少年的生活质量（QOL）测量工具在人群需求评估、教育安置以及计划设计和评估中非常有用。本研究评估了青少年听力损失生活质量工具-耳聋和重听模块（YQOL-DHH）的横断面有效性。
仪器开发和横断面调查。
通过学校、专业组织、诊所和聋人或重听青少年项目进行招募。
35 项候选项目被施用于 230 名 11 至 18 岁的青少年：49%为女性，61%为白人，11%为轻度听力损失，20%为中度/中重度，41%为重度/极重度，28%为人工耳蜗植入者。参与者通过纸笔（58%）、基于 Web 的英语（29%）、美国手语（ASL）或洋泾浜签名英语（PSE）（9%）在 DVD 上或由采访者监督的 ASL 或 PSE DVD（4%）完成个人或小组问卷。还完成了儿童抑郁量表（CDI-S）。评估了因子结构、信度、结构有效性和受访者负担。
最终仪器保留了 32 项涵盖 3 个领域的项目：自我接受/倡导（14 项，Cronbach α = 0.84）、感知耻辱（8 项，Cronbach α = 0.85）和参与（10 项，Cronbach α = 0.86）。生活质量与听力水平无显著相关性。一周内的测试-重测系数可接受：自我接受/倡导（0.70）、感知耻辱（0.78）和参与（0.92）。正如预测的那样，总 CDI-S 分数与 YQOL-DHH 的所有领域都呈适当方向相关（P <.0001）。纸笔版完成时间为 12 分钟。
YQOL-DHH 显示出良好的可靠性和有效性，可用于评估青少年听力特异性生活质量。
