Unit for Deaf and Hard-of-Hearing Children and Adolescents in Central Norway, Department of Child and Adolescent Psychiatry, St. Olavs Hospital Trondheim University Hospital, Trondheim, Norway.
Department of Mental Health, Faculty of Medicine and Health Sciences, NTNU-Norwegian University of Science and Technology, Trondheim, Norway.
BMC Psychol. 2021 May 27;9(1):89. doi: 10.1186/s40359-021-00590-x.
Several studies have assessed the Quality of Life (QoL) in Deaf and hard-of-hearing (DHH) children and adolescents. The findings from these studies, however, vary from DHH children reporting lower QoL than their typically hearing (TH) peers to similar QoL and even higher QoL. These differences have been attributed to contextual and individual factors such as degree of access to communication, the participants' age as well as measurement error. Using written instead of sign language measures has been shown to underestimate mental health symptoms in DHH children and adolescents. It is expected that translating generic QoL measures into sign language will help gain more accurate reports from DHH children and adolescents, thus eliminating one of the sources for the observed differences in research conclusions. Hence, the aim of the current study is to translate the Inventory of Life Quality in Children and Adolescents into Norwegian Sign Language (ILC-NSL) and to evaluate the psychometric properties of the self-report of the ILC-NSL and the written Norwegian version (ILC-NOR) for DHH children and adolescents. The parent report was included for comparison. Associations between child self-report and parent-report are also provided.
Fifty-six DHH children completed the ILC-NSL and ILC-NOR in randomized order while their parents completed the parent-report of the ILC-NOR and a questionnaire on hearing- and language-related information. Internal consistency was examined using Dillon-Goldstein's rho and Cronbach's alpha, ILC-NSL and ILC-NOR were compared using intraclass correlation coefficients. Construct validity was examined by partial least squares structural equation modeling (PLS-SEM).
Regarding reliability, the internal consistency was established as acceptable to good, whereas the comparison of the ILC-NSL with the ILC-NOR demonstrated closer correspondence for the adolescent version of the ILC than for the child version. The construct validity, as evaluated by PLS-SEM, resulted in an acceptable fit for the proposed one-factor model for both language versions for adolescents as well as the complete sample.
The reliability and validity of the ILC-NSL seem promising, especially for the adolescent version, even though the validation was based on a small sample of DHH children and adolescents.
已有多项研究评估了聋人和重听儿童及青少年的生活质量（QoL）。然而，这些研究的结果不尽相同，有的报告称聋人和重听儿童的 QoL 低于其健听同龄人，有的则认为两者 QoL 相当，还有的则认为聋人和重听儿童的 QoL 更高。这些差异归因于环境和个体因素，例如获得沟通的程度、参与者的年龄以及测量误差。研究表明，使用书面而非手语测量会低估聋人和重听儿童的心理健康症状。预计将通用 QoL 测量转化为手语将有助于从聋人和重听儿童那里获得更准确的报告，从而消除研究结论中观察到的差异的一个来源。因此，本研究的目的是将儿童和青少年生活质量量表翻译成挪威手语（ILC-NSL），并评估 ILC-NSL 的自我报告和聋人青少年的书面挪威语版本（ILC-NOR）的心理测量特性。同时纳入了家长报告作为比较。还提供了儿童自我报告和家长报告之间的关联。
56 名聋人儿童以随机顺序完成 ILC-NSL 和 ILC-NOR，同时他们的父母完成了 ILC-NOR 的家长报告和一份关于听力和语言相关信息的问卷。使用 Dillon-Goldstein's rho 和 Cronbach's alpha 检验内部一致性，使用组内相关系数比较 ILC-NSL 和 ILC-NOR。使用偏最小二乘结构方程建模（PLS-SEM）检验结构效度。
就可靠性而言，内部一致性被确定为可接受至良好，而 ILC-NSL 与 ILC-NOR 的比较表明，对于青少年版的 ILC，其对应性比儿童版更为接近。使用 PLS-SEM 评估的结构效度，对于青少年以及整个样本的两种语言版本的拟议单因素模型，都得到了可接受的拟合。
ILC-NSL 的可靠性和有效性似乎很有前景，特别是对于青少年版本，尽管验证是基于一小部分聋人和重听儿童和青少年的样本。
