Department of Otolaryngology, University of Minnesota, Minneapolis, USA.
JAMA Otolaryngol Head Neck Surg. 2013 Mar;139(3):294-300. doi: 10.1001/jamaoto.2013.35.
Adolescence is a life stage with rapid and major developmental changes, yet little is known about how these changes influence the quality of life of young people who are deaf or hard of hearing (DHH).
To determine differences in the 3 domains of a hearing-specific quality-of-life instrument between youth who had severe to profound sensorineural hearing loss based on whether they used no technology, hearing aids, or cochlear implants.
A multi-institutional prospective cohort study.
A convenience sample of 11- to 18-year-old youths with severe to profound sensorineural hearing loss recruited between January 1 and December 31, 2008.
Youth Quality of Life-Research Instrument and Youth Quality of Life Instrument-Deaf and Hard of Hearing (YQoL-DHH) scores. The YQoL-DHH was composed of 3 domains: participation, self-acceptance/advocacy, and stigma-related quality of life.
A total of 157 individuals participated. Overall mean (SD) age was 14.1 (2.3) years, and the female-male ratio was 82:75. Forty-nine individuals (31.2%) were not using any technology, 45 (28.7%) were using hearing aids, and 63 (40.1%) were using cochlear implants. Mean age of unilateral or first cochlear implant was 62.9 months. Thirty-eight individuals (24.2%) attended schools with DHH programs, 55 (35.0%) attended schools without DHH programs, and 58 (36.9%) attended schools for the deaf. Statistically significant differences were noted in YQoL-DHH participation and perceived stigma scores between the groups when stratified by technology used and school setting.
These data suggest that the domains of quality of life as measured by our instrument differ significantly among youth based on technology used and school setting. Youth using no technology or cochlear implants tended to score higher than those using hearing aids in mainstream schools with or without DHH programs and in schools for the deaf. The YQoL-DHH instrument is able to detect differences in quality of life within a group of youth with severe to profound hearing loss.
青春期是人生中一个快速发展的阶段，身体和心理都会发生重大变化。然而，对于失聪或听力受损的青少年，这些变化如何影响他们的生活质量，目前知之甚少。
确定基于是否使用无技术、助听器或人工耳蜗，3 个听力特异性生活质量工具领域在重度至极重度感音神经性听力损失的年轻人之间的差异。
多机构前瞻性队列研究。
2008 年 1 月 1 日至 12 月 31 日期间招募的 11 至 18 岁重度至极重度感音神经性听力损失的青少年，采用方便抽样法。
青少年生活质量研究工具和青少年生活质量工具-聋人和重听（YQoL-DHH）评分。YQoL-DHH 由 3 个领域组成：参与度、自我接纳/倡导和与耻辱感相关的生活质量。
共有 157 人参与。总体平均（SD）年龄为 14.1（2.3）岁，男女比例为 82:75。49 人（31.2%）未使用任何技术，45 人（28.7%）使用助听器，63 人（40.1%）使用人工耳蜗。单侧或首次人工耳蜗植入的平均年龄为 62.9 个月。38 人（24.2%）就读于聋人项目学校，55 人（35.0%）就读于无聋人项目学校，58 人（36.9%）就读于聋人学校。根据使用的技术和学校设置对 YQoL-DHH 参与度和感知耻辱评分进行分层后，发现组间存在显著差异。
这些数据表明，我们的仪器测量的生活质量领域在使用技术和学校设置方面，在年轻人中存在显著差异。在有或无聋人项目的主流学校以及聋人学校中，未使用技术或人工耳蜗的年轻人比使用助听器的年轻人得分更高。YQoL-DHH 仪器能够检测重度至极重度听力损失人群内生活质量的差异。
