Boquet Jaime R, Oliver Debra Parker, Wittenberg-Lyles Elaine, Doorenbos Ardith Z, Demiris George
School of Nursing, University of Washington, Seattle, 98195, USA.
Am J Hosp Palliat Care. 2011 Dec;28(8):564-8. doi: 10.1177/1049909111405644. Epub 2011 Apr 26.
This study aims to provide insight into the role of grandchildren as informal hospice caregivers. It presents 4 cases that highlight the challenges and perceptions of grandchildren who care for a grandparent at the end of life. A researcher met regularly with family caregivers to discuss the problems or challenges during hospice caregiving. Although each caregiver presented unique individual experiences, several themes are common among the family caregivers including fatigue, stress, guilt, and loss of the "grandchild" identity. Grandchildren caregivers often take care of 3 generations (grandparents, parents, and children) and in many cases need additional assistance to help them overcome the challenges associated with managing a household, career, family, and caregiving roles.
本研究旨在深入了解孙辈作为非正式临终关怀照料者的角色。它呈现了4个案例，突出了在生命末期照料祖父母的孙辈所面临的挑战和看法。一名研究人员定期与家庭照料者会面，讨论临终关怀照料期间的问题或挑战。尽管每位照料者都有独特的个人经历，但家庭照料者中存在几个共同主题，包括疲劳、压力、内疚以及“孙辈”身份的丧失。孙辈照料者通常要照顾三代人（祖父母、父母和子女），在许多情况下需要额外的帮助来克服与管理家庭、事业、家庭和照料角色相关的挑战。
