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非正规临终关怀照顾者的压力差异。

Stress variances among informal hospice caregivers.

机构信息

University of Kentucky, Markey Cancer Center, Lexington, Kentucky 40506-0509, USA.

出版信息

Qual Health Res. 2012 Aug;22(8):1114-25. doi: 10.1177/1049732312448543. Epub 2012 Jun 6.

Abstract

Care interventions are not routinely provided for hospice caregivers, despite widespread documentation of the burden and toll of the caregiving experience. Assessing caregivers for team interventions (ACT) proposes that holistic patient and family care includes ongoing caregiver needs assessment of primary, secondary, and intrapsychic stressors. In this study, our goal was to describe the variance in stressors for caregivers to establish evidence for the ACT theoretical framework. We used secondary interview data from a randomized controlled trial to analyze hospice caregiver discussions about concerns. We found variances in stress types, suggesting that caregiver interventions should range from knowledge and skill building to cognitive-behavioral interventions that aid in coping. Family members who assume the role of primary caregiver for a dying loved one need to be routinely assessed by hospice providers for customized interventions.

摘要

尽管有大量文献记录了照顾者的负担和痛苦,但临终关怀护理人员通常未得到护理干预。评估护理人员以进行团队干预 (ACT) 提出,全面的患者和家庭护理包括对主要、次要和内在心理压力源的持续照顾者需求评估。在这项研究中,我们的目标是描述照顾者压力源的差异,为 ACT 理论框架提供证据。我们使用随机对照试验的二次访谈数据来分析临终关怀护理人员对关注问题的讨论。我们发现压力类型存在差异,这表明照顾者干预措施应从知识和技能培养到认知行为干预,以帮助应对压力。那些为临终亲人承担主要照顾者角色的家庭成员需要由临终关怀提供者定期评估,以提供定制的干预措施。

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