Nowinski Cindy J, Victorson David, Cavazos Jose E, Gershon Richard, Cella David
Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine 710 N. Lake Shore Drive, 7th Floor, Chicago, IL 60611, USA.
Therapy. 2010 Sep 1;7(5):533-540. doi: 10.2217/thy.10.55.
The impact of neurological disorders on the lives of patients is often far more complex than what is measured in routine examination. Measurement of this impact can be challenging owing to a lack of brief, psychometrically sound and generally accepted instruments. Two NIH-funded initiatives are developing assessment tools, in English and Spanish, which address these issues, and should prove useful to the study and treatment of epilepsy and other neurological conditions. The first, Neuro-QOL, has created a set of health-related quality of life measures that are applicable for people with common neurological disorders. The second, the NIH Toolbox for the Assessment of Neurological and Behavioral Function, is assembling measures of cognitive, emotional, motor and sensory health and function that can be used across all ages, from 3 to 85 years. This article describes both the projects and their potential value to epilepsy treatment and research.
神经疾病对患者生活的影响往往比常规检查所衡量的要复杂得多。由于缺乏简洁、心理测量学上可靠且被普遍接受的工具，衡量这种影响具有挑战性。两项由美国国立卫生研究院资助的计划正在开发英语和西班牙语的评估工具，以解决这些问题，并且应该会被证明对癫痫和其他神经疾病的研究及治疗有用。第一个是神经生活质量（Neuro-QOL），它创建了一套与健康相关的生活质量测量方法，适用于患有常见神经疾病的人群。第二个是美国国立卫生研究院神经和行为功能评估工具箱（NIH Toolbox for the Assessment of Neurological and Behavioral Function），它正在收集认知、情感、运动和感觉健康及功能的测量方法，这些方法可用于3至85岁的所有年龄段。本文介绍了这两个项目及其对癫痫治疗和研究的潜在价值。
