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沙特白癜风患者的生活质量

Quality of life in saudi vitiligo patients.

作者信息

Al-Mubarak Luluah, Al-Mohanna Hind, Al-Issa Ahmed, Jabak Monzer, Mulekar Sanjeev V

机构信息

College of Medicine, King Saud University, Riyadh, Kingdom of Saudi Arabia.

出版信息

J Cutan Aesthet Surg. 2011 Jan;4(1):33-7. doi: 10.4103/0974-2077.79188.

Abstract

BACKGROUND

Vitiligo has a devastating psychosocial effect. The cultural traditions of Saudi society are quite different compared with the western world. Hence, a quality of life study using a different questionnaire suitable to the cultural traditions of the society is necessary to measure qualify of life in vitiligo patients.

OBJECTIVE

This study was conducted to assess the quality of life (QOL) in Saudi vitiligo patients and their family.

MATERIALS AND METHODS

A prospective cross-sectional study at National Center for Vitiligo and Psoriasis, Saudi Arabia. A validated Arabic questionnaire of 41 questions was developed and utilized specifically for this study. Arabic language instrument was distributed to 260 vitiligo patients. Scores were compared in relation to demographic, clinical, and social variables in 4 dimensions of scale (relationship with colleagues, family relationship, social relationship, and self respect).

RESULTS

Overall score QOL was 17.1. Mean score for males was 11.1, whereas that for females was 23.9 (P < 0.05). Females scored significantly higher in all the 4 dimensions. Patients with exposed disease lesions scored significantly higher than those with unexposed lesions 5 vs 3.4 (P < 0.05).

CONCLUSION

The overall score of QOL in vitiligo is relatively high, indicating a negative impact of the disease on QOL. QOL in women is significantly more affected than in men.

摘要

背景

白癜风具有严重的心理社会影响。与西方世界相比,沙特社会的文化传统大不相同。因此,有必要使用适合该社会文化传统的不同问卷进行生活质量研究,以衡量白癜风患者的生活质量。

目的

本研究旨在评估沙特白癜风患者及其家人的生活质量(QOL)。

材料与方法

在沙特阿拉伯白癜风和银屑病国家中心进行一项前瞻性横断面研究。专门为本研究开发并使用了一份经过验证的包含41个问题的阿拉伯语问卷。将阿拉伯语问卷分发给260名白癜风患者。在量表的4个维度(与同事的关系、家庭关系、社会关系和自尊)中,对与人口统计学、临床和社会变量相关的得分进行比较。

结果

生活质量总体得分为17.1。男性平均得分为11.1,而女性为23.9(P<0.05)。女性在所有4个维度上的得分均显著更高。有暴露疾病皮损的患者得分显著高于无暴露皮损的患者,分别为5分和3.4分(P<0.05)。

结论

白癜风患者生活质量的总体得分相对较高,表明该疾病对生活质量有负面影响。女性的生活质量受影响程度明显高于男性。

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