Beukelman David, Fager Susan, Nordness Amy
Institute for Rehabilitation Science and Engineering Madonna Rehabilitation Hospital and University of Nebraska, 202 Barkley Memorial Center, P.O. Box 830732, Lincoln, NE 68583-0732, USA.
Neurol Res Int. 2011;2011:714693. doi: 10.1155/2011/714693. Epub 2011 Apr 14.
Almost all people with amyotrophic lateral sclerosis (ALS) experience a motor speech disorder, such as dysarthria, as the disease progresses. At some point, 80 to 95% of people with ALS are unable to meet their daily communication needs using natural speech. Unfortunately, once intelligibility begins to decrease, speech performance often deteriorates so rapidly that there is little time to implement an appropriate augmentative and alternative communication (AAC) intervention; therefore, appropriate timing of referral for AAC assessment and intervention continues to be a most important clinical decision-making issue. AAC acceptance and use have increased considerably during the past decade. Many people use AAC until within a few weeks of their deaths.
几乎所有肌萎缩侧索硬化症（ALS）患者在疾病进展过程中都会出现运动性言语障碍，如构音障碍。在某个阶段，80%至95%的ALS患者无法通过自然言语满足日常交流需求。不幸的是，一旦言语清晰度开始下降，言语表现往往会迅速恶化，以至于几乎没有时间实施适当的辅助和替代沟通（AAC）干预；因此，AAC评估和干预的适当转诊时机仍然是一个极其重要的临床决策问题。在过去十年中，AAC的接受度和使用率大幅提高。许多人在去世前几周仍在使用AAC。
